• Replies 2 replies
  • Subscribers 67 subscribers
  • Views 520 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

5 year old son recently diagnosed, where now! no one seems to help or advise

NAS87881

Good Morning All

My youngest son Jack who's just turned 5 has recently been diagnosed with Autism. Throughout the whole process his school hasn't been much support and even now that we've told them he's had his formal diagnosis they're still not very helpful on what they're going to do moving forward.

He has issues with every day life which we need to get him help with and address but even the doctors and hospital having followed up with any help.

Where do we turn now to get him the help required? Any advise gratefully received.

  • If you prefer to read, there are a load of good books out there that offer information and advice that is easy to search and re-read on your computer / tablet / phone:

    Asperger's Answer Book - The Top 275 Questions Parents Ask - Susan Ashley PhD (2006)
    ISBN 1402219776

    Asperger's Syndrome - A Guide for Parents and Professionals - Tony Attwood (2008)
    ISBN 9781843106692

    Asperger's Syndrome - A Guide to Helping Your Child Thrive at Home and at School - Melinda Docter, Ed.D._ Syed Naqvi, MD (2010)
    ISBN 9780470140147

    Everyday activities to help your young child with autism live life to the full - Debra S Jacobs, Dion E Betts
    ISBN 9781849052382

    I would recommend reading the reviews on Amazon before deciding to buy any so you can judge if they have been helpful for other parents.

    If you have specific questions then this site has a wealth of information. I would suggest starting with the seach button (the magnifying glass icon near the top right of the screen) and search for other discussion threads to see if the same question has been asked / answered before - then reply to one of those threads if you have a question that is relevant to your inquiry.

  • I'm pasting a reply from a moderator from another thread that is relevant here:

    When your son was diagnosed, did your doctor ask you about special educational needs, or discuss an Education, Health and Care Plan (EHCP)? An EHCP is like an agreement between you, your child's doctor and their school, which outlines what kind of extra assistance or care they may need and makes sure the school understands your sons's ASD - which it sounds like they don't at the moment?

    I would recommend reading the section on the NAS site about EHC plans (http://www.autism.org.uk/about/in-education/extra-help-in-school/england/ehc-plans.aspx) and in general the section on autism and education - http://www.autism.org.uk/about/in-education.aspx

    If you would like to speak to someone directly then please call the NAS Helpline on 0808 800 4104 (Mon-Thurs 10am-4pm, Fri 9am-3pm). I would also recommend calling the NAS Educational Rights Service, which you can read about here - http://www.autism.org.uk/services/helplines/education-rights/contact.aspx, as one of its main purposes is helping parents of children with ASD who don't feel they're getting the support they need from their school.