Challenges of being Parent of Young adult with autism - any advice ??

You are not alone our son is similar and we had that moment where he was bordering on abusive and we sent him to have a few days with his brother so we could negotiate a way of living together that works for both of us ,

He wouldn’t come back, turning down the lift and bed at his brothers he chose to sleep outside Tescos telling everyone he’d been made homeless which wasn’t true.

in the end he got sheltered accommodation .

He now admits he wasn’t made homeless he wanted to be independent. He had to go on benefits to get the housing but had refused to work of go on benefits for a couple of years at home .

things are not the best but our relationship has improved and he calls us most days for s chat .

I think the story above indicates that it’s important to resolve these difficulties way before they get to crisis point. To have a young autistic person sleeping rough outside a supermarket is obviously unsafe for them, and I would be worried sick if my son was doing that. If we can maintain trust and communication with our children throughout their childhoods then hopefully a situation like that can be avoided. Navigating life a an autistic child and young adult can be incredibly difficult and they are often under a tremendous amount of pressure. Sometimes that can be expressed in meltdowns, shutdowns, depression etc - so they are not always ‘at their best’ for obvious reasons. What they need is to know that their parents are 100% on their side through thick and thin. Obviously abusive behaviour is unacceptable from anyone but there are ways to deal with that and to prevent it too most of the time. Autistic people are at higher risk of suicide, and young men are at higher risk of suicide too. The option of ‘laying down the law’ and issuing lots of rules and ultimatums when someone might be very vulnerable can have serious outcomes (like the young man above who ended up sleeping rough) - it’s best avoided. Our children need kindness and understanding. The rest of the world is often judging them, the education system can be often be traumatic for them, so home needs to be a safe place, ‘a soft place to fall’, somewhere they can relax and unwind, and recover from the tension of being an autistic person in a neurotypical world. 

Kate Kestrel said:

The option of ‘laying down the law’ and issuing lots of rules and ultimatums when someone might be very vulnerable can have serious outcomes (like the young man above who ended up sleeping rough) - it’s best avoided.

To be fair to NAS84594,they did say:

NAS84594 said:

He now admits he wasn’t made homeless he wanted to be independent.

I think in most cases a known framework of rules and punishments is probably important in their lives at that stage - there is a natural predisposition to rebel by teenagers (especially males) and the complications of autism in understanding what we feel and how we chose to express it make it a turbulent time for us.

Having that safety of knowing there is a safe option to choose is often the think that stops us going off the rails completely.

Kate Kestrel said:

Our children need kindness and understanding.

But they also need to be treated as adults - to continue treating them as children is going to make them act out even more in many cases. To give them the safety net of the family support if they don't act like a a-hole is not a big ask at all.

It also gives an soft introduction to what they are about to face in the "big, bad" world of work or further education where actions have much more serious consequences.

None of us can truly understand the workings of another persons family. I don’t there is judgement here, it’s just people sharing their own personal experience in case it might be helpful. If it’s not helpful then please ignore it. Your experience is obviously very painful and complex and I’m really sorry that your whole family have experienced so much distress. I hope things will improve in time for all of you. 

That’s very kind of you to apologise Iain - thank you. I do understand where you’re coming from and everyone has their own approach, and everyone is different. I think I probably have been very fortunate in that my children maybe have the type of nature that made my job as a parent easier in terms of confrontation etc. The vast majority of the time they were just really well behaved. So I don’t pretend to have the answers for anyone else, I’m just sharing my experience as you are and it’s all valid and only intended to help for all of us I’m sure :) 

In terms of what I’d do I stick with an approach of ‘let’s wipe the slate clean and state afresh with no judgement’ - even if it’s been tried previously. But you really have to MEAN it - no judgement. Genuine forgiveness without grudges. Most people don’t WANT conflict with their parents. Like every problem in live you have to be a bit of a detective, in a very gentle sense with loved ones and relationships. I don’t believe many people don’t respond to love, compassion and a true desire to help. I believe it’s always possible to improve a relationship if there is still love there. And I don’t believe that relationships improve with a mindset of ‘punishment’. The very concept implies a power imbalance - and this young man is 20 - he’s not a child and so there should not be a power imbalance in a way their sort of has to be with young children. 

Ultimately we all want to be loved, to be understood, to be valued and to be happy. I’m sure this woman’s son is not enjoying things being like this, and I’m sure he wants things to be better too. He’s probably lonely and wants to have a good relationship with his family. Deep down he will want to change the situation too. 
I believe there is huge hope that that can and will happen. 

I have to say I find most of these comments very judgemental and wholly unhelpful.

I know we had no rules as such but we did encourage him not to deeply wound other members of the family .it was verbally abusive behaviour we were asking him not to do. Eg he decided he didn’t like the person his favourite brother ( we have 7 kids) was marrying. He kept sending her abusive texts even on the morning of the wedding. He told them he was going to object in the objection bit in the service and sat outside glaring at everyone going in the church

This was the sort of behaviour we weren’t happy with and you bet we had many hours listening and kindly reasoning to no avail

we know and understand the hurt and difficulty autistic young adults face and I’m sure of us use bucket loads of completely unappreciated compassion but there comes a point where

whole families lives are ruined and torn apart and cruelty and abusive behaviour needs to be discouraged for everyone’s sake particularly the autistic parsons

Kate Kestrel said:

I was in his mothers shoes I would ask to sit down with him and have a fresh start.

It sounds from the initial post that this was tried and failed due to his confrontational responses, and that olive branches are being torched by him too. That was why I was suggesting a more logical, rules based approach.

Kate Kestrel said:

I have firm boundaries with my children, but I didn’t ‘punish’ them.

How do you deal with it when they knowingly breach the boundaries as the OPs son has? Talking about it results in abuse and confrontation so I'm genuinly curious about how you would deal with this hostility.

Kate Kestrel said:

I don’t think being compassionate and trying to encourage a collaborative approach to this situation is ‘rainbows and unicorns’ as you (patronisingly!) categorise it!

I apologise for being patronising. It comes from a place of frustration and has no place here.

Hi Iain, I can see that we have very different approaches to this and we are not going to agree - which is fine. 
I don’t think being compassionate and trying to encourage a collaborative approach to this situation is ‘rainbows and unicorns’ as you (patronisingly!) categorise it! When autistic people become adults I think it’s important to treat them like adults - not like naughty schoolchildren who need to be ‘trained’ with ‘rules and punishments’. It’s about mutual respect. I have firm boundaries with my children, but I didn’t ‘punish’ them. I realise that I’ve obviously been very fortunate because for the vast majority of the time my children have been respectful and kind in our family unit. I’ve always listened to them and respected their positions because they’ve always tried to do their best. With my eldest we went through a period where there were more arguments and it was upsetting, but we had very strong foundations to our relationships that meant we were able to get through those difficult times without too much pain, and certainly no long term damage to our relationship. We have always respected our children and it has resulted in them respecting us in return. It’s not perfect - no relationship is - but we all know that we are 100% on each others side. We know to forgive when we have a rocky patch, and to move on and not hold a grudge.  I’ve never ‘punished’ anyone in my life, with my children I simply explained why certain things were a problem and they were thankfully bright enough to understand and take that on board. We say sorry and we mean it, we accept apologies and don’t hold a grudge. Being autistic is far from easy and sometimes stress can bring out the worse in us, or make us withdraw from life. We need to be forgiving of that and not be too harsh or judgemental when people feel overwhelmed. The young man in the original post only got his diagnosis a year ago and he’s probably still coming to terms with that and re-evaluating his life and what it means for his future. It’s a lot to take on. Of course it’s no excuse to abuse anyone, and if I was in his mothers shoes I would ask to sit down with him and have a fresh start. Wipe the slate clean and say : how can we do this better? Tell him I love him but I can’t accept abuse, but at the same time say that let’s forgive and forget and start again. Where is this anger coming from? What can I do to help? Can we work together? Drop the judgement, harshness and criticism on all sides and start again. That’s what I would do. 

Hi Iain, I can see that we have very different approaches to this and we are not going to agree - which is fine. 
I don’t think being compassionate and trying to encourage a collaborative approach to this situation is ‘rainbows and unicorns’ as you (patronisingly!) categorise it! When autistic people become adults I think it’s important to treat them like adults - not like naughty schoolchildren who need to be ‘trained’ with ‘rules and punishments’. It’s about mutual respect. I have firm boundaries with my children, but I didn’t ‘punish’ them. I realise that I’ve obviously been very fortunate because for the vast majority of the time my children have been respectful and kind in our family unit. I’ve always listened to them and respected their positions because they’ve always tried to do their best. With my eldest we went through a period where there were more arguments and it was upsetting, but we had very strong foundations to our relationships that meant we were able to get through those difficult times without too much pain, and certainly no long term damage to our relationship. We have always respected our children and it has resulted in them respecting us in return. It’s not perfect - no relationship is - but we all know that we are 100% on each others side. We know to forgive when we have a rocky patch, and to move on and not hold a grudge.  I’ve never ‘punished’ anyone in my life, with my children I simply explained why certain things were a problem and they were thankfully bright enough to understand and take that on board. We say sorry and we mean it, we accept apologies and don’t hold a grudge. Being autistic is far from easy and sometimes stress can bring out the worse in us, or make us withdraw from life. We need to be forgiving of that and not be too harsh or judgemental when people feel overwhelmed. The young man in the original post only got his diagnosis a year ago and he’s probably still coming to terms with that and re-evaluating his life and what it means for his future. It’s a lot to take on. Of course it’s no excuse to abuse anyone, and if I was in his mothers shoes I would ask to sit down with him and have a fresh start. Wipe the slate clean and say : how can we do this better? Tell him I love him but I can’t accept abuse, but at the same time say that let’s forgive and forget and start again. Where is this anger coming from? What can I do to help? Can we work together? Drop the judgement, harshness and criticism on all sides and start again. That’s what I would do. 

None of us can truly understand the workings of another persons family. I don’t there is judgement here, it’s just people sharing their own personal experience in case it might be helpful. If it’s not helpful then please ignore it. Your experience is obviously very painful and complex and I’m really sorry that your whole family have experienced so much distress. I hope things will improve in time for all of you. 

That’s very kind of you to apologise Iain - thank you. I do understand where you’re coming from and everyone has their own approach, and everyone is different. I think I probably have been very fortunate in that my children maybe have the type of nature that made my job as a parent easier in terms of confrontation etc. The vast majority of the time they were just really well behaved. So I don’t pretend to have the answers for anyone else, I’m just sharing my experience as you are and it’s all valid and only intended to help for all of us I’m sure :) 

In terms of what I’d do I stick with an approach of ‘let’s wipe the slate clean and state afresh with no judgement’ - even if it’s been tried previously. But you really have to MEAN it - no judgement. Genuine forgiveness without grudges. Most people don’t WANT conflict with their parents. Like every problem in live you have to be a bit of a detective, in a very gentle sense with loved ones and relationships. I don’t believe many people don’t respond to love, compassion and a true desire to help. I believe it’s always possible to improve a relationship if there is still love there. And I don’t believe that relationships improve with a mindset of ‘punishment’. The very concept implies a power imbalance - and this young man is 20 - he’s not a child and so there should not be a power imbalance in a way their sort of has to be with young children. 

Ultimately we all want to be loved, to be understood, to be valued and to be happy. I’m sure this woman’s son is not enjoying things being like this, and I’m sure he wants things to be better too. He’s probably lonely and wants to have a good relationship with his family. Deep down he will want to change the situation too. 
I believe there is huge hope that that can and will happen. 

I have to say I find most of these comments very judgemental and wholly unhelpful.

I know we had no rules as such but we did encourage him not to deeply wound other members of the family .it was verbally abusive behaviour we were asking him not to do. Eg he decided he didn’t like the person his favourite brother ( we have 7 kids) was marrying. He kept sending her abusive texts even on the morning of the wedding. He told them he was going to object in the objection bit in the service and sat outside glaring at everyone going in the church

This was the sort of behaviour we weren’t happy with and you bet we had many hours listening and kindly reasoning to no avail

we know and understand the hurt and difficulty autistic young adults face and I’m sure of us use bucket loads of completely unappreciated compassion but there comes a point where

whole families lives are ruined and torn apart and cruelty and abusive behaviour needs to be discouraged for everyone’s sake particularly the autistic parsons

Kate Kestrel said:

I was in his mothers shoes I would ask to sit down with him and have a fresh start.

It sounds from the initial post that this was tried and failed due to his confrontational responses, and that olive branches are being torched by him too. That was why I was suggesting a more logical, rules based approach.

Kate Kestrel said:

I have firm boundaries with my children, but I didn’t ‘punish’ them.

How do you deal with it when they knowingly breach the boundaries as the OPs son has? Talking about it results in abuse and confrontation so I'm genuinly curious about how you would deal with this hostility.

Kate Kestrel said:

I don’t think being compassionate and trying to encourage a collaborative approach to this situation is ‘rainbows and unicorns’ as you (patronisingly!) categorise it!

I apologise for being patronising. It comes from a place of frustration and has no place here.