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What now?

NAS83617

My 9 year old son has recently been diagnosed with autism. I have fought for 3 years for him to be seen. Now that we have had the diagnosis I feel as if they have just sent us on out way to navigate everything ourselves. I have looked online, which is how I came across this page. My son is struggling to come to terms with autism and what it means for him. I have tried explaining that he is still the same wonderful person he has always been but I feel that it would be beneficial to get help from organisations or even clubs where he could meet children and people that may understand him a little more. I am in the glasgow area. If anyone has any information or knows of anyone I can contact it would be a great help. Thankyou for taking the time to read. 

  • in reply to Jill

    In our area there are two organisations which have Facebook groups and one had opportunities to meet up pre Covid. The Primary School had information about groups and courses. You could ask them, or Family Centres may have lists of any local groups.

  • in reply to Homebird

    That's good that your son has that opportunity to discuss things if he needs to and feels able to. Do you have any suggestions on how to make contact with other parents. The only place I've found is here but I'm not sure how much contact people make yet. I've tried helplines to find stuff in my area but there's just nothing. 

  • My experience with my son in Secondary School is that it helps to some extent that school may take the diagnosis into consideration if we query something. It can help to get reasonable adjustments.

    I can remember when we got the ASD diagnosis being surprised that my son was now discharged. However as he also has ADHD CAMHS have appointments to review medication. Depending on the doctor this has given him the opportunity to discuss problems he has had related to autism.

    As a parent it can help making contact with other parents who understand. From my son's point of view meeting peers with autism depends on the individuals.

  • Hi, that's exactly how I felt (still feel) after my daughter was diagnosed. It's like theres just nothing. A few websites and helplines (but the helplines just refer you to websites). The only help there seems to be after diagnosis is slightly more understanding from people at school and stuff, which helps but doesn't help also. I'm a newbie here but I'm a listening ear, feel free to get in touch anytime, not sure if I could say much to help but just having people understand can help.

  • Hello ,

    I'm sorry to hear that you haven't had the support you wanted following your son's diagnosis. 

    You may find the following page our website useful: 

    https://www.autism.org.uk/advice-and-guidance/topics/diagnosis/post-diagnosis-support 

    You may also want to use our Autism Services Directory to search for services in your area that cater for people with an autism spectrum disorder. You can find the Directory here: https://www.autism.org.uk/directory 

    All the best,

    ChloeMod 

  • There is a search option for services by local area on this site. 

    It's great that you're being so supportive. If you can't find something local, there are lots of videos and blogs from autistic people that might help him.