... doesn't mean that I can fulfil them.
And I have no idea how to bridge the gap. Life is becoming just too hard.
... doesn't mean that I can fulfil them.
And I have no idea how to bridge the gap. Life is becoming just too hard.
Hi Jenny - it sounds like you’re having a difficult time - I’m sorry. What’s happened?
Hi there. It is simply the chronic nature of all of our problems taking its toll over time. I'm tired and emotional and probably need a good sleep.
Our cannabis prescription is still helping but, even at that, I have occasional breakthroughs of very negative emotions, especially during annual "milestones" (for which read "millstones" in our case) such as birthdays, anniversaries and Christmas. Unfortunately we are now entering a two month period where a lot of these cluster together. And this isn't helped when I can see others in my family buying then renovating their own homes, getting jobs and relationships and generally getting on with their lives. And yes, the conventional ways aren't necessarily our ways, but there's been a long dearth of anything positive happening around here, whether in the orthodox ways or not.
In a way, I can cope with specific things happening - i.e. one off negative events - much more easily than a daily grind which doesn't let up. Maybe I'll just have a cry then a sleep and re-emerge feeling as though I've had a good vent and be good to continue.
Hi Jenny,
coincidentally I had a bit of a cry today for similar reasons. It can all feel so overwhelming sometimes can’t it? It’s not just one thing - it’s EVERYTHING. And the lack of support. The news is depressing too - you feel if there are no services now it’s only likely to get even worse! We feel very isolated sometimes - there’s no help really. I think having a cry is probably a good thing really. I feel I’m always trying to be strong - and I get so tired and worn out. It’s best to let these feelings out. I’m sorry you’re feeling this way too. It’s not surprising- I know that like me you have your own challenges and are also doing you best to support autistic children with all their challenges. My youngest is feeling very down - and everything I try and do to help him this week has not helped at all. This makes me feel like a failure as I want more than anything in the world to help him. Sometimes we have to accept that we can’t always help - however much we want to. But as you say - have a rest, a drink or whatever helps, and tomorrow is another day - and hopefully a slightly better day. And if tomorrow isn’t better - then maybe next week. Or next month. But life is too precious to give up on it all. x
Yes. It all feels like too much and I mistrust services after all of our negative experiences with them.
I feel blocked or thwarted. My sister is going to her daughter's graduation this weekend. I daren't leave the house because my husband can't cope and I fear what I might find when I return. The coffee definitely helps but it's not looking as though I can turn things around here. Locked in. For reasons which, although I have a vague idea about, ultimately remain obscure and not amenable to our efforts or good intentions.
I'm doubting that I have what it takes to be a longer term carer, although I suspect many carers will feel the same. I honestly didn't think that parenting would get harder as they got older.
Yes. It all feels like too much and I mistrust services after all of our negative experiences with them.
I feel blocked or thwarted. My sister is going to her daughter's graduation this weekend. I daren't leave the house because my husband can't cope and I fear what I might find when I return. The coffee definitely helps but it's not looking as though I can turn things around here. Locked in. For reasons which, although I have a vague idea about, ultimately remain obscure and not amenable to our efforts or good intentions.
I'm doubting that I have what it takes to be a longer term carer, although I suspect many carers will feel the same. I honestly didn't think that parenting would get harder as they got older.