9 year old boy - suspected autism

Hi all! I apologise and thank you in advance, this might be long. 

My son has turned 9 in April and is finding things more and more difficult. He is struggling with school. Some days are easier than others but half of the week he has tummy ache because he is so stressed about. If they have a national day celebration or smt he doesn't want to go. He can't explain why but it usually ends up with him being in tears the day before for hours. I've tried talking to understand but never get a reply. He doesn't know. I recently realised its the changes in the schedule that stress him out. They went on a school trip a month ago. It was a fun day out. He didn't want to go but I pushed him. I said to go and try as the last 2 years due to Covid they didn't go. He accepted it and didn't make a fuss however for the last 5 days before the trip every night we have the same discussion. They were told not to take their school bags with them but to take another bag. This seemed so wrong to him - we talked it over and again. But mummy, everyday I go with my school bag, this is weird. I tried explaining, I said maybe other kids feels it weird too but its like that for everyone... 

He never goes to parties, he only likes playdays on a 1-1 basis. Even with his 2 friends that they go to school everyday together for the past year when asked to go out to Mcdonalds with them and the guy/friend who drives them all to school he didn't want to go. He doesn't feel comfortable. Of course he has no hobbies outside of home. He won't join another class. He does painting at home now on a 1-1 basis. 

All this is fine if he can't tolerate it and is perhaps on the spectrum, of course we will support him, I was pushing thinking maybe with Covid he got used to being just us and needed a little push. 

3 years ago we went and had so many medical tests done as he keeps complaining about his feet and hands. He has this "need" to press his fingers and toes down. Most shoes are not comfy enough for him so we them bigger. Gloves same issue. The doctor back then told me that we ruled out everything medical and perhaps we need to see if its psychological. I thought he was joking. My happy little boy. But my happy little boy is not so happy any more. He struggles socially a lot and I struggle with him. 

He currently has occupational therapy, we were told he is super weak and has been going for a year. They are on top of it and have a psychiatrist who runs the centre and has seen him last year and this year. Their concern is that he doesn't understand well the emotions. Especially the negative ones. He suggested to have speech therapy but not in terms of pronunciation. They said at this age speech therapy is more to do with understanding and showing emotion. 

My therapist about a month ago suggested that he might be on the spectrum although he has never seen him, just from everything I've been saying. I must admit it got me by surprise. He thought I was suspecting it and this is why I was discussing it so much. He feels that the doctors back then should have pushed me more to have him evaluated. So here am I am at a loss. I have a meeting with the head at the centre he goes to ask what she thinks. They have never mentioned a specific diagnosis they focus on the problems and I like that. They pushed me to have him started with language therapy. It wasn't me. But they never mentioned why he is like this. Just how they can help. Should I ask directly? Can a 9 year old kid be on the spectrum and not show more obvious signs earlier? Though to be fair with Covid the last 2 years it wouldn't have been easy to pinpoint such behaviours. 

I'm sorry if this is confusing. Its difficult to know where to focus and what might be important. 

Thank you for any advice! 

  • My son started to show more evidence of autism at 9. (Now I know there were signs earlier but didn't recognize them as such). We mentioned it to his teacher and she didn't agree.

    After a year of pursuing a referral from a GP we were on track for tests which diagnosed him. We had problems getting adjustments at school, but now he has a diagnosis it is different. It can still be hard as he doesn't always know how to explain his problems, but they try to help where they can. If you feel he may have autism, if he is happy to go to your GP to discuss it, it is worth going as the waiting for assessment will be a long time.

  • There's what is called a 'milestones' marker. Where kids hit up against a wall which peers seem to have no issue with. We will always be - I'll use your phrase - Spectrum thinkers. I'm Happily autistic and my son is on the spectrum - dyslexic, some language issues, and thriving. He's 25. I'm helping him mature his way - he's far more psychologically grounded than his peers but he doesn't drive yet.  He's become quite the cook and a fantastic mixologist, but still not sure about his future. We look up pragmatics of words all the time, society uses them incorrectly. He's thrived more around me with reliability and room to move at his pace than he did with his father who was "NeuroTypical" and and extrovert and chaotic. Some of my sons senses are very sharp and some aren't, but like most on the Spectrum we learn and grow different. There is no reason a school cannot make Reasonable Adjustments which are Human Friendly and support natural Autism Spectrum qualities which grow Reliability, Stability, Mindfulness. 

    The reason we now need to have clinicians involved is severalfold. Technology has changed to the extent that given a certain economics factor, cheaper items are being pushed into use which Highly sensitive Autistics are catching because we don't dull our senses like our NeuroTypical peers. And these advances are not Human Friendly. Since we think, reason, and understand quite different, we were quite needed for tribal societies with keen abilities to sense danger or forage. We might have been medicine doctors or alchemists, moving forward in society we are needed for research as we're not easily 'bullied' or hypnotised like the masses by adverts or swayed by some special semiotic meaning. We don't use language the same. Therefore, your son probably doesn't need a therapist just an Encyclopaedia. He may quite enjoy a therapist, though.

    This human friendly component is key. During lockdown, nature started to play, move, navigate in ways many had never seen from bioluminescent beaches to Orcas off the coasts of Africa and Spain suddenly realising how their life should be, thus suddenly attacking ships once movement started again. Your son may have felt like he was sleepwalking through life, overwhelmed and once he suddenly had a moment to breathe - he may have started to feel human again and actually can't shut down to function. That kind of slow withdrawing can happen in increments over time. 

    For those of us born this way, a few key elements are important. One, our ability to sense a thing while frustrated by an inability to properly identify it. We might be amazing at explaining the science by 40, but the things we sense (as our human sense or... a "Spidy" sense) isn't actually heightened, it's just not dulled. And because our brains aren't naturally wired to focus to strengthen language/semiotics connexions the same way as NT brains, we might reason with imagery or with formulas and use either different lobes in our brain to problem-solve something our Typical peers would simply use language for. Second, the best way to help us integrate socially, if we must, is by understanding the fundamental principles of kindness, appropriateness, ethical basics, little rules to make life more aesthetic and enjoyable for everyone (myself included). This might take a little extra effort and sometimes it could be silly - but note. It may hinder his effectiveness greatly, he may be able to focus on school work or a project OR mind conscious social politeness. Third, we can be known for a constant state of analysation, which can also mean we're not really in-tune with our feelings. Some of us have a difficult time identifying feelings as is as Everything is connected and complex, including feelings so asking an autistic child how they feel might cause them more distress than asking them what they're thinking. This can mean feelings might not affect us the same. But Real Things Do. Harmful chemicals, loud noises, cruel humans. They don't make us 'feel' bad, but violated or hurt or impacted. 

    These are some good links:

    https://monotropism.org

    https://www.huffpost.com/entry/autism-brain-symmetry_n_5841d0b1e4b0c68e0480b469/amp 

    https://autistic-village.com/category/inside-aut/ 

    Please note, these are just thoughts from what you've posted. There's much I don't know, but these keys can help as a start with his "NeuroType".