Published on 12, July, 2020
Hello, I am the mother of an 11 tear old with Asperger's who was diagnosed when he was four. Frankly I feel like I can't carry on. He behaves wonderfully at school and has found the transition to high school much easier than we had hoped. At home he is a nightmare (but not all the time). He swears incessantly (I think he likes the sound of the words), argues, and when he gets angry he bangs doors and kicks the furniture. He can't amuse himself very often. He has never has a friend and relies on me and my husband for constant entertainment. He likes to play on video games but gets extremely cross with them when he can't do something. He won't play out. He is grumpy and rude a lot of the time. I find him infuriating. He soils himself, wets the bed and won't go to the toilet at aone. The only advice anyone ever gives is "Write a social story" These don't work. I am sick to death of the whole situation and can't really see the point of anything - is this going to be the rest of my life. I fantasise about running away with my daughter but am not quite horrible enough to do that. I know I should just focus on him but I just don't know how to help.
Has anyone else ever felt like giving up?
You need a gap time for yourself, a hour or two a day,, with a tandem support care service, to give you time to recover. I am sure you love you children, but we all have a cognitive and emotion limit. Hopefully, you can find a support service, even if it a member of your family, to give you time out, you can even going shopping with your daughter,, a mini runaway. Don't feel guilt, you are doing the right thing talking about the sitution. Next you need the right assistance. You would think that the NAS would assist you in finding a support prop as they are the autism experts or are they just pretending to be creating a further maze for the autism society ?