Any Mums of Girls with Asperger's in Lancashire

Hi 

I'm Colleen & I am 27,  have autism.

I have been looking for a group as well. 

Hope to talk soon x

Hi Vicki, thanks for responding. How long did the diagnosis process take for you. We were first referred to the Consultant 14 months ago and only yesterday got him to actually say that our daughter was highly likely autistic and he referred us to the social communication disorder team. It sounds like now we have to go through another load of assessments until eventually they all sit down and agree a diagnosis. It frustrates me because the diagnosis doesn't help her its just a lable. What she needs is intervention now, not in a years time when we eventually decide she is definately autistic. it seems so obvious to us that she is clearly autistic that I can't see the point in needing several other professions to agree.

Hows your son doing now? if you on't mind me asking how did he present at 2.5 years old? 

hi u sound like u struggling i have austic son he is near ten ivebeenthrough it all so f u ever want chat im avilable

Hi everyone,

i know this is an old post but thought I'd try it anyway. I have a 2.5 year old daughter who has ASD and I've tried everywhere to find parents with similar aged children going through the sam experience but I've had no luck. We really need the support of other parents right now. How are all your daughters doing now?

My son has just been diagnosed with Aspergers and I have a daughter who is almost 11 who i am sure has it too. She has an appointment in may to start the assessment.

Hi Squirrel,

I am a mum with Asperger's and I believe that my daughter (3 y 4m) also has AS, but I'm fighting a losing battle trying to get the GP or the HV to refer her for an assessment. We live in the Fylde.

Hiya, sorry to hear it's been so frustrating for you so far.

Obviously it's a difficult call to make but I'm sure that if you found a supportive local group there wouldn't be a problem with suggesting it as a helpful place to meet other parents in your area.

Dear Jim,

I appreciate your concerns. However, I have been down the conventional routes already. I have contacted support groups including those run by NAS within an hours radius of our home. The youngest girl I have found through this route is 16. I have asked our specialist paediatrician, health visitor and psychologist - none have come back to us. Our details have been on contact a family for a year with no results. Our local child development centre are unaware of any others. I have even gone to the lengths of paying £100 for an advery in a local children's magazine in the hope that this will help us to find others.

Is there any way the thread could remain and if there are others we could maybe arrange to meet at a local support group - thereby not exchanging any personal information on line? Would this be acceptable?

If not, I am more than happy to take onboard any other suggestions you have for finding other girls.

Hi Squirrel30, 

As mentioned in the registration rules in order to protect everyone's privacy and in order to manage the risks involved in an online community (especially since this is something very new for the NAS) we can't currently allow people to share personal contact details. 

Your obviously more than welcome to share your experiences with other users of the Community, from across the UK, here and you may also want to take a look at the directory of autism services provided by the NAS. 

This includes local NAS branches and other support groups - have a look to see if there's a local service listed that would help you get in touch with other parents in a similar situation.