Published on 12, July, 2020
So this is the first time I have ever posted anything but honestly I'm at the end of my limits. My child is 12 I have know since he was very young that something was special about him, but because it was my first child I was patted on the head and passed from pillar to post. 12 months ago we were told adhd and referred to more services!! Please let me say that my child has been let down by so many services cahms, Schools and Dr's. 5 weeks ago we went for ados assessment still waiting on outcome, but no one ever gives you a straight answer or offers constructive advice so for everything that has happened and all the fighting to try and get help all I have is a bunch of labels !!!!
Totally, my elder daughter was diagnosed in 2004 and it is still the same cr###p. Hung on. It will start to make sense.
Does he get ADHD medication? Get it, it does huge difference and removes one problem that can be removed by medication.
NAS had an excellent 'Help!' training, a introduction into autism for parents, check their helpline whether they still have it.
I won't lie, it's a life of continuous struggle with schools and other services.
Start reading up on the NAS website and in here, take the asd positive progressive view and help your son to develop a positive identity.
For advice NAS, Ambitious about autism, Special needs jungle, SOSSEN, IPSEA
Autism is awesome boys and girls talk https://vimeo.com/216052066
Look here if anything of use https://community.autism.org.uk/f/parents-and-carers/15468/help-getting-my-15-year-old-daughter-back-into-a-routine
Thank you for your response, yes he is on medication we tried for a while without but it was unfair on us all, food and sleep are a problem because of his meds but as you said its been the first time in his life that he can now sit still for a short time. I am now looking at websites just to get information