One child ASD and one NT

My five year old daughter has ASD and severe learning difficulties and I also have a three year old son who is neurotypical.

Is anyone else in this situation, where their youngest is NT? Our peadiatrician has told us our son will soon 'overtake' our daughter and in some ways he already has - he attempts proper conversations and notices things, is curious about things, shows empathy when someone is upset, copes with changes and new places fine.

I am really struggling with this concept and it kills me to watch him and think about the future where he will have to be the older one and learn all about his sister's issues. He absolutely dotes on her and follows her around like a puppy.

I also feel very guilty because each morning I look forward to hearing his latest observations, new phrases he has learnt, new questions etc whereas my daughter is just so predictable and monotone. She will just repeat phrases from tv programmes, no conversational talk atall and if I am honest it is tedious and wearing. Makes me feel like we get nowhere with her, nothing out of her, no personality or character. : (

She is going to SN school in Sept and everyone reassures us that they will bring her on so much she will thrive so I am looking forward to this happening and hopefully his will allieviate these feelings I have.

xx

 

 

  • i totally understand that, sometimes i've felt 'this is it, i cant take it anymore, i think we need to break up this time' but its been 12 years, and its something that we get better at with time, so there IS ALWAYS HOPE

    your welcomeSmile

  • Yes they have lots of other autistic kids there, a couple will be in her class and they have autism specialists working there too, a couple of the teachers are doing MAs in it as well so we should get lots of answers and help.

    Thanks for understanding anyway and for your advice - some days are better than others and I am much more positive and hopeful, but have just had a run of difficult days so am losing faith again!

    Will look up those vids though - good idea for inspiration.

    xx

  • you dont sound negative, just stressed and left to deal with all this alone and with nothing but ignorant people who havent a clue about autism or what it actually means, 

    I said at the end of my post 'please dont give up hope on her' but i took it out as i thought it sounded tactless or harsh, but i think i will put that in here now, because it sounds like you have not had all the help you should and need to be aware there IS hope

    please go watch temple grandins you tube vids and the trailer for the movie , also go look up famous autistics, there are a lot of themLaughing

    in this school do they have other autistic children? yes i think a lot of sn schools have to do what the mainstream schools can't and don't, which is something the government need to change

  • Thanks - am just tired I think and having a bad day, didn't mean to sound so negative. Yes we have been told it is her way of communicating and at least she IS communicating with us in her own way. She does occasionally come out with the odd phrase which is from an observation or a feeling etc. We just haven't had any for a while and I forget!

    Yes our pead did say that, but we have since discovered she isn't a great peadiatrician so I am starting to take what she says with a pinch of salt at times!

    I think I just have days where my son's progress is streets ahead of what hers was at that age and I know you shouldn't compare but easier said than done.

    She is starting SN school in Sept and we are hoping they can shed some light on where she is on the spectrum because her mainstream school last year just couldn't cope with her atall so couldn't give us much insight into her autism or learning difficulties. She has had settling in visits there and they did not bat an eyelid at her funny ways atall so it was lovely to meet people who understand and have seen it all before.

    Thx for replying though as well xx

  • i think its a shame anyone would say your son is going to "overtake" your daughter rather than they have different personalites and will grow differently

    an odd choice of words for someone who works with children, but maybe i expect too much

    have you talked much with any people about your daughter and her autism and what it means forher?

    because it doesnt sound like anyone has really been there to help you learn the facts, she wont be "overtaken" at all, shes just different,

    if she is high functioning, ie if she can communcate, then she will probably have a decent future ahead of her, just with problems, but whos future doesnt Smile

    and even if she isnt high functioining there are plenty non high functioning autistics who can communcate, look at temple grandin, one of the most famous severely autistic people, who is also the reason its known about to the degree it is, they gave up hope on her when she was young, you should watch some vids of her, she has a good career

    i think its a shame if you have been subjected to the steryotyping and scaremongering rather than being told facts about autism, yes it can be difficult, yet there will be a lot of problems, but it doesnt mean your daughters life is going to be "overtaken" or less in any way

    im insulted as a neurotypical anyone would say that to you in this day and age

    she may seem to have 'no personality no character' but im telling you shes in there, shes just not finding it as easy to express herself as we nts do, if you keep teaching her, she will pick it up and maybe one day surprise you, and that pedeatrition

    do you know that when she is repeating those monotone phrases from the tv that IS her communciating, that IS her showing intrest, that is a good thing to see in her, not a bad thing, it means she is capable of speaking and probbaly understanding what you are saying