Hi all, I have a 9 yo dd who I have suspected from babyhood to be on the spectrum but Iv ignored and tried to manage symptoms on my own (badly). She is high functioning but I wonder if there are any benefits in seeking a diagnosis when she has no learning disability or physical impairments. she is a high achiever at school but I just am worried that I don't have the knowledge or tools for her as she enters her teens.
My daughter is 8 and we are trying to get her assessed, have been since she was 4 (but that's a different story!) my daughter is also one of the top students in the class academically, but her social skills are not great and she has started having sensory problems in school which are starting to impact her learning, I also know that things can get alot harder for her as she gets older so I am pushing for diagnosis now so she can move forward not seeing things as some unknown flaw in her, just a different way of thinking and seeing the world .
You may find the behaviour section on the NAS website helpful, it’s full of information on common behaviours and possible strategies:
Here’s a link:http://www.autism.org.uk/living-with-autism/understanding-behaviour.aspx
Hope this helps,
It will allow you to be able to get support for her in school should it if ever be needed. This isn't necessarily academic support. It can be emotional etc. It may also be of help to her as an adult and getting jobs etc.
It can be beneficial to you as you may be entitled to DLA money and you can get carer discounts when you take her out. You may be able to access services such as CAHMS to help her and you manage her behaviour etc at home.
It will help her to understand herself. I wish I'd been diagnosed as a child. I spent a lifetime wondering why I was so different. What was wrong with me. I needed the answer.
I know that I need a diagnosis as an adult to deal with ignorant Neuro Typicals but have always known I was different.
Upon diagnosis, the markers/traits will start to become clearer plus you could use that, with help, to identify triggers and coping mechanisms. It may also provide identified strengths that your daughter has which is a plus for possible career opportunities.
As it is a spectrum then we are all different and may also be high achievers (or in part fail at exams because our learning is not reading/repeating but doing) as well as having difficulties. I now know my condition is much worse when under stress/pressure/anxiety that I have no control over and I need a full diagnosis.
Without a diagnosis, I would not have been able to access the support I needed to sit my A level and university exams when my sensory issues and phobias became too great for me to sit them in a conventional exam hall with other students. Academic ability alone will not necessarily guarantee an individual can complete their education, and sensory problems can intensify in autistic individuals as they get older and social dynamics/environments become more complicated. If your daughter ever were to hit some kind of 'crisis' point and need immediate support, her diagnosis may help her to access the right kind of support as quickly as possible. (Imagine having to go through the process of pursuing a diagnosis to get access to support while she is in some kind of meltdown because of an unexpected situation.)
Actually, no, I tell a lie: I did my A levels, went to uni, dropped out, went to uni a second time, dropped out, got my diagnosis, went to uni a third time, got a First (in a subject that was completely unrelated to my first two attempts). I'm veering way off topic, but I just wanted to correct myself! Sorry.
It allows her to get support if things get worse for what ever reason. She might not need any support now, but it's a safety net just in case :) Better to have it than not!
I just don't want her labelled. She already feels different to her peers and i worry that a autism label will make her feel worse. Also school have no idea and I doubt that if they had to file a report for multi disciplinary for diagnosis they would concur that she shows no symptoms. She tells me she holds it in all day and then let's it all out (like a hurricane) at home. Biggest issues are sensory, rituals, obsessive interests, poor friendships, emotionally immature (she's 9 but my 5 year old would have more emotional maturity) she has a subtle tick, she is withdrawn at times and very full on at other times. she suffers massive anxiety when we have to go anywhere. Birthday parties are a no go. Any type of change in routine can be overwhelming for her. Yet in school she just goes with it. I'm so lost.
My daughter has always had sensory issues which was the reason I suspected asd when she was younger. Clothes are a nightmare. Noise is an issue, smells and taste. Eats the same meal everyday.
Girls with autism masking is very common. You often hear parents say their autistic child is ok in school but loses it when they get home.
I do get you not wanting to label her but having lived that life of feeling different to my peers, I felt a lot more different before my diagnosis. That gave me a reason. Without the reason I just felt like a freak.