I have a lovely, but demanding 3.5 year old daughter who was diagnosed with ASC over a year ago.
Now she is getting older, her symptoms, temper and sleeplessness is becoming worse (terrible threes?)
I'm a big believer in alternative therapies and regularly use CBD oil on myself and Personal training clients.
We've tried everything under the sun for her ongoing sleeping issues: Magnesium liquid, Vitamin D spray, Melatonin, oats, Lavender oil and Homeopathy, but nothing works!
We've literally never had an entire week of her sleeping through the night, since her birth.
Wife and I are at the end of our tethers!
We've now started using CBD from a company called the Original Alternative (formerly CBD brothers), who where kind enough to give me a sample bottle of their Purple Edition Formula, which is a Sativa/ Indica blend, and only 0.021% THC.
See: Purple Edition
Three weeks in and we've noticed minor improvements to her mood/ anxiety, however her sleep has not improved and she will be awake 2-5 hours every night!
We have been adviced that we can increase the dosage to two pumps per day in her drink (currently only having one per day), but I'm now wondering if its the Sativa in the blend which can be slightly stimulating (versus Indica).
Anyone had any experience (positive or negative) using CBD please?
Any ideas/ products would be appreciated! :-)
I don't have any experience of giving it to a child, but my Father takes CBD oil from the same company. He did increase his dosage recently. It is helping with the sleep problems associated with Parkinsons.
One of my nieces is an expert on oils. She told me that there is an alternative to lavender that helps her young son sleep. I can't remember the name of it now but will get back to you. It begins with a V I think, not valerian though.
Some parents report that omega 3 and probiotics help with challenging behaviour. The scientific evidence is ambivalent, I suspect this is because it works for some children but not for others.
I would be very careful about experimenting with a child of 3. There have been many 'treatments' tried on autistic children only to find out later that they have caused more harm than good. The internet is awash with various alternative treatments.
I think your best bet would be to keep a diary of what experiences and sensory inputs upset her and which ones she is okay with and try to adjust her day accordingly.
Homeopathy never works because it is utterly ridiculous - sorry to be blunt, but I'm autistic.
Thank you Graham!
We did try Omegas and Probiotics with little success.
I kind of have to agree with your statement about Homeopathy! I think its mostly placebo with that one!
Her outbursts tend to be very random, and sometimes within a seemingly "happy situation". One minute we'll be playing happily together, the next she will throw a complete tantrum and need to be cuddled or soothed.
There doesn't seem to be any pattern or obvious reason. She will often throw a huge tantrum when she doesn't get her own way, but i guess thats all kids.
The worst outbursts are at night, when we're trying to get her back to sleep. She will fight like crazy, then eventually go to sleep 2-4 hours later. I wish I knew why! :-(
My daughter is 8 and undiagnosed at the moment but has had severe sleep problems since birth. She did settle down a bit between 12-18 months but since then I'm lucky if she sleeps 3-5 hours a night and not all at once!
I repeatedly asked doctors for help and got told all parents say their children don't sleep! Peads finally saw her at 4 and said she needed assessment and asked gp to refer her as they have better access, but our gp in there wisdom decided she was fine and didn't bother sending it! Or telling us this we waited and finally found out she had not been referred. School nurse got involved and arranged referral but she was rejected due to the wording of the referral letter. I have been going round in circles for years now with my daughter not sleeping.
I finally had enough waiting for them to help so started her on melatonin gummies and what a difference it was fantastic. We had been considering cbd as an alternative as she gets very bad anxiety as well.
However when my daughter told her anxiety counsellor that I gave her something for sleep, well the tirade of phone calls and emails from school, and school nurses as well as family support was to much they were even considering if it was a safeguarding issue! ( got round it as it is classified food supplement) but we have had to stop giving them and now we are back to no sleep
I wish I could recommend it but be aware of fall out.
I’m not the parent of an autistic child, so I can’t give you first hand advice, but NAS does offer a parent to parent service which you can find here. The NAS helpline can be found here. Child Autism UK also have a helpline, you can find it here. There is a Facebook page ‘Autism Moms Support Group’ that can be found here, it’s based in the U.S.A. but has an international reach, you may get some helpful tips. Ambitious About Autism are also worth checking out. You may find it best to talk to some one who has been through the same. Some autistic children are very averse to the feel of some bed clothes and bedding. That might be an avenue worth checking.
I will check with my niece this evening about which oil she found works for her son and post back.
How crazy! Poor you going round in circles like that. The system is flawed for sure!
I'm going to try and start the referral process now, and even call our local Autism Charity (Amaze) to see if they can help at all.
We did try the Melatonin gummies too, but from what I understand is they help with getting to sleep, rather than keeping you asleep, and they didn't do much either.
Have you not tried the CBD yet then?
No my partner uses himself and finds it helpful but after the grief we got for the melatonin we didn't want to give them anymore reason to moan at us! To be honest it seems ridiculous to me but they want any thing done with medical support but when you have been asking for years and gp can't help til peads says so and peads won't help until child development centre assess her it just seems unfair that we get penalised for doing something that helped but oh well
I just thought I'd warn you that some professionals have real problems with parents trying alternatives or taking matters into their own hands
I wish you the best of luck with everything!
Vetiver sometimes called vetivert. My niece said it calms her young son and helps him sleep. Worth a try.
Great- thank you buddy!
I take it you burn this in the air in the bedroom?
Will give it a try!
Sorry, I forgot to ask, I assumed you vaporise it. She is in Europe at the moment, she works in the aromatherapy business and is often there.
Here’s a link to a guide, it says it is safe enough to put on skin undiluted. I would use a vaporiser personally, if you have one.
You might also want to check out Temporal Processing, these two articles will give you an idea. Atypical temporal processing can cause sleep problems.
I sometimes use binaural beats if I can’t sleep. I have sound → colour/shape synaesthesia though, so I don’t know if it would be as relaxing for your daughter. Some parents of autistic have reported that it does work.
https://www.youtube.com/watch?v=1l13TSFrNgM Again, worth a try. Good luck, Graham.