• Replies 3 replies
  • Subscribers 65 subscribers
  • Views 1109 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

New diagnosis/Help/Where 2 start now!!

stacey1471

Hi, 

I am a mum of two beautiful boys.  one 5 just been diagnosed with an 'autistic spectrum disorder' and my other lil monster just 17 months.

just wanted to chat to others who are or have been in my shoes.  

sounds strange but i can totally relate to my son (the oldest with the diagnosis) how he behaves and his frustration at the moment as its him and he been the same for well since things didn't seem as they should.  but what i cannot get my head around and understand is how he is going to be in 2,5,7 years time.  I supose i am trying to paint a picture of what my little boy is going to be like with regards to the diagnosis???

haha its like asking you guys to predict the future! lol 

also whats the difference between 'austic spectrum disorder' and aspergers? as diagnosing dc said he will probley be refered to as aspergers as he gets older?? bit confusing!??

Well thanks and Hi to you all 

stacey

  • Thanks for both of your replies! 

    I am now a bit clearer on the whole 'autisum spectrum disorder'Just confused me where she said ge may be refered to as having 'aspergers' syndrome as he gets older.

    I have requested the 'new dignosis' pack from the support team here. Also have registered for safe which is the local aspergers group in my area. It was the diagnosing dc who gave me this info and said to register with them. (which is what confused me more) lol

    Well take each day as it comes & just try to learn as much as poss to help my son!

    Have either of you been on or know anyone who has been on the 'help' information course arranged by NAS?? 

    Thanks again. 

    Stacey 

  • Hi Stacey,

    How your son copes and adapts as he gets older will depend on two things - his personality, and how much help he gets.

    Personality wise we basically go one of two ways - I, for example, internalised everything, becoming, in a sense, withdrawn, and, probably largely for that reason, was not diagnosed until I was nearly 40! Others externalise it and get spotted quickly (and it sounds like your son is an externaliser).

    Now this probably means you're going to have a hard time of it at times - your son will probably get angry and lash out when he's really frustrated - which he can't entirely help doing - but this is where how much help he gets comes in - and you're in the best position possible - it's been spotted early and so you can start getting him help as soon as possible.

    With the correct help and guidance, even the worst externalisers can learn strategies and mechanisms to cope with their frustrations, and do well in life.

    Use the resources on this site, and available to you locally, to get as much help for him as you can, and is appropriate, and he will almost certainly do just fine.

    I think the confusion around the 'autistic spectrum disorder' vs 'aspergers' terminology is that as we develop (and this is everybody, not just us auties), our 'personalities', for the want of a better word, kind of emerge and settle, and so it's probably simply too early to be sure where on the spectrum he will end up, hence the umbrella term 'autistic spectrum disorder' being used at this stage.

  • hello and welcome,

    The term "Autism spectrum disorder" means he's on the spectrum, somewhere. Aspergers refers to a particular type of high functioning Autism.

    You may find that as he gets older, he may adapt better than what he is now.