Hi, can anybody help. Where can I get further help. Granddaughter (16) recently diagnosed AS.another terrible bullying episode at school. Now refusing to attend and I don't blame her. Have asked school to consider home tuition for last six months of her statutory schooling. Obviously because school have failed to help in the past, they are only too happy now to help.
Thing is she has missed so much education do not think she will manage to cope with home education. Her mum, my daughter, also has many learning difficulties. She is 42 and although I tried everything to get help for her when she was at school, she was badly failed. Because of granddaughter's diag. we have received lots of information, and I now think they have both inherited my genes.
I am sure I am AS but at 65, and the fact that I have survived, bringing up 4 siblings from the age of 19 (with the help of my brother who was 18 when our parents died), I am not bothered about myself. Thing is, what good is the information now. How can my daughter, being the autistic mother of a child with Aspergers, be expected to find the help needed. I feel useless, but who will help them when I am not around.
Can you suggest where to go for help. All the information seems geared to parents who are able and equipped to help their autistic children, but when the parent is also autistic, who will help?
What does your son know about Aspergers?! For there are several views that might not fit his self-image.. Which persons does he look upto, are there any famous people amoung them; ther might be a big chance he might even idolize (without knowing) people with Aspergers.. There are several amazingly great minds who changed the world and were Aspies!!
Conforming is a bíg wish in any person, maybe overly with autism.. (Overly aware of how things should be).. He needs guidance from someone who knows what it's like to have Aspergers.
Maybe it is more advicable stop boxing and (first!!) get him interested in something more challenging, like karate or sth, which works with body and mind!! learning to be aware of your body and with strict rules when one is allowed to use force!!
I hope he can accept the fact he has Aspergers.. there is more to it than just down-sides.. But when keeping ignoring it, he will make things worse for him..
Hi ,my son was diagnosed with aspergers over two years ago , although he is medicated heavily for depression , we are really strugling to lift his mood . Love to hear from other parents struggling to cope in this area .My son is Fourteen and doesn,t think life is worth living .He will not except his condition ,he just wants to blend in with his peers . Still he is always on the outside . He is an ameture boxer but as he cannot argue ,uses his fists to settle differances .Help !
Hi ,my son was diagnosed with aspergers over two years ago , although he is medicated heavily for depression , we are really strugling to lift his mood . Love to hear from other parents struggling to cope in this area .My son is Fourteen and doesn,t think life is worth living .
We are based in Scotland and have recently discovered the Children's Disability Service w ho offer support and respite. worth looking into, try googling it for your county.
Good luck, it will come together. Th ere is a lot of support out there, just takes time to get round to accessin g it all and absorbing all info.
Mhaire
Thank you so much for taking time to answer. I am to attend our local CAHMS soon for an ASD one day workshop, the first such meeting I have attended. I will ask them also for as much info as they have. I will also follow your advice re membership of NAS. Hopefully matters will start to move now we eventually know what the problems have been all these years. I think I am panicking at the thought of the journey ahead, but I know it has to be travelled.
Thank you again and I send you, your dear son and your family my very warm wishes.
I can understand how you feel. We worry about what will happen to my son when we are not around. I do not have ASD, however we are pretty sure my husband is AS. He suffers with anxiety a huge amount and struggled with school, social etc.
I just wanted to offer you a little comfort in that this forum is very, very supportive, informative and always there for you in my experience.
Perhaps there are some local support groups/networks your whole family could get involved with? Are you a member of your local NAS branch? They are usually a fountain of knowledge. You can get the details on this website or from the helpline number. They may be able to point you in the direction of other support services in your area.
There are lots of websites and groups to support home schooling that are also very helpful and many will be doing it for the same reasons as your daughter. www.schoolhouse.org.uk is one I have come across but think it is mostly for Scotland but I am sure there will be a similar one for elsewhere in UK and it will still give you lots of ideas.
I am sure it will work out, with that wee bit of help and support you deserve along the way.
