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Desperate

Rio
Hi, can anybody help. Where can I get further help. Granddaughter (16) recently diagnosed AS.another terrible bullying episode at school. Now refusing to attend and I don't blame her. Have asked school to consider home tuition for last six months of her statutory schooling. Obviously because school have failed to help in the past, they are only too happy now to help. Thing is she has missed so much education do not think she will manage to cope with home education. Her mum, my daughter, also has many learning difficulties. She is 42 and although I tried everything to get help for her when she was at school, she was badly failed. Because of granddaughter's diag. we have received lots of information, and I now think they have both inherited my genes. I am sure I am AS but at 65, and the fact that I have survived, bringing up 4 siblings from the age of 19 (with the help of my brother who was 18 when our parents died), I am not bothered about myself. Thing is, what good is the information now. How can my daughter, being the autistic mother of a child with Aspergers, be expected to find the help needed. I feel useless, but who will help them when I am not around. Can you suggest where to go for help. All the information seems geared to parents who are able and equipped to help their autistic children, but when the parent is also autistic, who will help?
Parents
  • Mhaire Thank you so much for taking time to answer. I am to attend our local CAHMS soon for an ASD one day workshop, the first such meeting I have attended. I will ask them also for as much info as they have. I will also follow your advice re membership of NAS. Hopefully matters will start to move now we eventually know what the problems have been all these years. I think I am panicking at the thought of the journey ahead, but I know it has to be travelled. Thank you again and I send you, your dear son and your family my very warm wishes.
Reply
  • Mhaire Thank you so much for taking time to answer. I am to attend our local CAHMS soon for an ASD one day workshop, the first such meeting I have attended. I will ask them also for as much info as they have. I will also follow your advice re membership of NAS. Hopefully matters will start to move now we eventually know what the problems have been all these years. I think I am panicking at the thought of the journey ahead, but I know it has to be travelled. Thank you again and I send you, your dear son and your family my very warm wishes.
Children
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