Hi, can anybody help. Where can I get further help. Granddaughter (16) recently diagnosed AS.another terrible bullying episode at school. Now refusing to attend and I don't blame her. Have asked school to consider home tuition for last six months of her statutory schooling. Obviously because school have failed to help in the past, they are only too happy now to help.
Thing is she has missed so much education do not think she will manage to cope with home education. Her mum, my daughter, also has many learning difficulties. She is 42 and although I tried everything to get help for her when she was at school, she was badly failed. Because of granddaughter's diag. we have received lots of information, and I now think they have both inherited my genes.
I am sure I am AS but at 65, and the fact that I have survived, bringing up 4 siblings from the age of 19 (with the help of my brother who was 18 when our parents died), I am not bothered about myself. Thing is, what good is the information now. How can my daughter, being the autistic mother of a child with Aspergers, be expected to find the help needed. I feel useless, but who will help them when I am not around.
Can you suggest where to go for help. All the information seems geared to parents who are able and equipped to help their autistic children, but when the parent is also autistic, who will help?
I can understand how you feel. We worry about what will happen to my son when we are not around. I do not have ASD, however we are pretty sure my husband is AS. He suffers with anxiety a huge amount and struggled with school, social etc.
I just wanted to offer you a little comfort in that this forum is very, very supportive, informative and always there for you in my experience.
Perhaps there are some local support groups/networks your whole family could get involved with? Are you a member of your local NAS branch? They are usually a fountain of knowledge. You can get the details on this website or from the helpline number. They may be able to point you in the direction of other support services in your area.
There are lots of websites and groups to support home schooling that are also very helpful and many will be doing it for the same reasons as your daughter. www.schoolhouse.org.uk is one I have come across but think it is mostly for Scotland but I am sure there will be a similar one for elsewhere in UK and it will still give you lots of ideas.
I am sure it will work out, with that wee bit of help and support you deserve along the way.
I can understand how you feel. We worry about what will happen to my son when we are not around. I do not have ASD, however we are pretty sure my husband is AS. He suffers with anxiety a huge amount and struggled with school, social etc.
I just wanted to offer you a little comfort in that this forum is very, very supportive, informative and always there for you in my experience.
Perhaps there are some local support groups/networks your whole family could get involved with? Are you a member of your local NAS branch? They are usually a fountain of knowledge. You can get the details on this website or from the helpline number. They may be able to point you in the direction of other support services in your area.
There are lots of websites and groups to support home schooling that are also very helpful and many will be doing it for the same reasons as your daughter. www.schoolhouse.org.uk is one I have come across but think it is mostly for Scotland but I am sure there will be a similar one for elsewhere in UK and it will still give you lots of ideas.
I am sure it will work out, with that wee bit of help and support you deserve along the way.
