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Run out of steam

Fishsupper

So, never posted in a forum before. Thought this might be the best place to start. I've run out of steam, after 5 years  and 9 months since the official diagnosis of autism for my child, I have nothing left. I can't cope. There's no support from "professionals", they only offer platitudes. I was referred to behaviour support in August 2015, my appointment was in January, a phone call in May has lead to a follow up appointment in July 2016. More platitudes I suspect. I lost it yesterday, and not in a tidy way. I'm scaring my husband and don't know how much more I can do.  I'm hoping I'm maybe not on my own here?

  • Former Member
    Former Member

    Hi Fishsupper,

    Welcome to the forum. There is a vast amount of stuff already posted in previous posts - see the search the community facility top left.

    Fishsupper said:

    I'm hoping I'm maybe not on my own here?

    No you aren't on your own. There are lots of people here with experience of what you are going through. A lot of the experience is, like me, from the point of view of a late diagnosed adult but there are also parents in similar position to you.

    What is your immediate problem? What has pushed you over the edge?


  • You might want to get in contact with a local branch. They will almost certainly have members who will empathise with your situation.


    We have 115 branches and groups across the UK.  People choose to start an NAS branch or group (groups are smaller) for all sorts of reasons. They might want to bring together families affected by autism in their local area, work with other people to improve local services or provide information and support. Every branch and group is different - some are parent support groups, some provide support and information to autistic adults, while others have office premises and run their own a drop-in service.

     

    For more information about starting an NAS branch or group, email branchservices@nas.org.uk


    Bob-Mod

  • Sorry to here you are so distressed

    Do try and contact our Autism Helpline, as they can provide you with information and advice on your issue. You can call them on 0808 800 4104 (Monday to Thursday 10am to 4pm, Friday 9am to 3pm), although please note that the Helpline is experiencing increasingly high demand, and you may not reach them straight away.

    Please see the following link for further information: 

    www.autism.org.uk/.../main.aspx

    Best Wishes

    Bob - Mod

  • Anonymous
    Anonymous

    Hi. Have a look in teh Parents and Carers section of this forum. You might find helpful stuff there.