Why?

Hi.

My name is Matthew and a few years ago I was diagnosed with Autism. Since then my life has changed, in some ways for the better but also for the worst. I now, don't really go out, I worry about mine and my families health and I worry quite a lot, sometimes I don't even know what I am worrying about. It seems quite silly I know but I'm hoping others on the forums will understand what I am talking about.

The reason I am writing now is because basically I am not really happy with who I am. My mum and dad always say that they wouldn't change me for the world, but for some reason I just dislike the way that I am. When I write books I always write about a brave man, a man who goes out and a man who helps protect others - that's me writing about the man I want to be, not the man I am. I also dwell on the past, I often think back to times when I have shouted at my mum, not gone out in the car when I wanted to and lately I haven't gone to see my gran who is in a carehome.

If anyone can help me like myself more and can get me out and about in the car then I'd be very grateful. Smile

Regards,

Matthew.

  • Hey Recombinantsocks,

    I also find it nice talking to someone else who suffers from ASD. It's not easy talking to my parents, I find it quite hard sometimes but talking with you and others who have ASD just seems so much easier, also it doesn't get my parents to stressed and worried about me. I'm not sure what your expression meant but I'm guessing it was a good one, I just didn't understand it!

    I too hope I manage the visit tomorrow. Even though my gran looks terribly ill and no longer rembers me I still like to see her. When I was first diagnosed with ASD I didn't go and visit my gran and grampy for a very long time, that is one of my regrets. Grampy sadly died but each time I go and see gran I like to think that I am making up for all of those times I missed seeing them.

    I will let you know how I get on tomorrow. I think we'll be leaving in the morning so I'll update after lunch. Thank you again for your comment, it is appreciated.

    Thanks again mate,

    Kind regards from,

    Matthew.

    P.S "Also speaking of my gran. On the 20th of September 2014 I am doing a mile long walk in Yeovil, this is to help support my gran and others who have altzhimers. If you manage to get some spare cash or if you tell your friends do you think you could please take a look at my donation page on justgiving.com

    To find my page on justgiving.com just use their searchbar and search for ---------. You should find my page then. Remember you don't have to donate, it's just that - Every penny helps! Thanks again. Smile

  • Hey again Recombinantsocks,

    Matthew again. You almost sound like my dad. He says things which mean something but I usually don't get what he's saying. Thanks for explaining it to me properlly.

    Kind regards,

    Matthew.

  • Hi Recombinantsocks!

    Don't worry I don't actually live in Yeovil, that's just where the walk is to. I never give my address away online. Thank you for donating, that is very kind of you. Also thank you again for helping me solve some of my issues. I'll edit the post above, make it secure.

    Thanks again mate.

    Kind regards,

    Matthew.

  • Former Member
    Former Member

    Means imagining what the other person can see or think. Imagine yourself standing where they are standing (in their shoes) and imagine what you can see from there and imagine what the other person might be thinking.

    I added the "at least a bit" part because I think that you have some understanding of what other people might be thinking.

    Not sure whether it was the basic phrase or the combination that confused you. I'm very used to confusing people with the things I say!

  • Former Member
    Former Member

    Thanks,

    I will do a donation. Can I suggest you edit your last post and take out your name and where you live - it isn't the best thing to share details like that on the forum and the moderators may remove your post as it breaks the rules.

    :-)

  • Former Member
    Former Member

    I've found it nice to think that someone else appreciates my thoughts so you've actually made me feel good too! I think that you have shown how you care about other people because you didn't want to worry your dad any more. You can see your affect on other people and can put yourself in their shoes at least a bit(I hope that expression makes sense - it's the type of expression that might confuse an ASD person!).

    I hope you manage the visit tomorrow without too much stress. I'm sure you can do it if you take your time and remember to think of good things. You will have a chance to talk to your dad in the car too. It's good to talk and exchange your thoughts with other people!

    Let me know how you got on after tomorrow.

    Best Wishes

  • Hi Recombinantsocks,

    I am really grateful for your quick responses. I guess your right, I was sick in the car once outside my grandparents house. It only happened once and ever since then I have never really trusted going out in the car, it's really silly to be honest because there's so much out there to see, so much to do and I don't do anything. This morning you have really helped me out and tomorrow I'll be going to see my gran at the carehome with my dad, I'll focus only on the positives and not the negatives. I owe all of this to you Recombinantsocks, I am very grateful for all of your help. Thank you so much.

    You only found out that you have ASD recently, I found out about four years ago when I started secondary school. Sadly it was a little bumpy at first and I did have a few issues, especially with health (I always thought I had every disease) but not anymore. I'll try and focus on the positive side of Autism.

    Once again, thank you Recombinantsocks. Thanks for all the comments you've made back to me. I am eternally grateful.

    Thank you so much for everything Recombinantsocks,

    Kind regards,

    Matthew. Smile

  • Former Member
    Former Member

    I'm really pleased that this made you feel better. :-)

    You really aren't being a pest, you are helping me to work out some of the things that have happened in my life! - I am going back over all sorts of things that have happened and I wonder if some of them were because of the ASD and exactly how the ASD had an impact on what I did. You have reminded me that I used to get car sick too, I had to go and visit my gran and I had to go and visit someone with dementia, and I am now figuring out why I felt so bad sometimes. Lots of it just happens and is nothing to do with the ASD - life happens to everyone and it's unpredictable and sometimes fun and sometimes not but I think it is a great adventure! I've just discovered I have AS. How amazing is that? How much stuff is there to learn about ASD? How are we the same as NT people and how are we different?

    Who else do you know that has it too? - I think you'll start to spot more and more people who have it - it is probably more common (or normal!) than you think. You have to be careful with this as lots of people would be very offended if you suggested that they are on the spectrum with us. Ask you parents privately if they agree with you about someone you think might be on on the spectrum. This can be a good game for you to play with your parents and it may help you, and them, to understand your diagnosis and how you are the same but different to NT people.

  • Recombinantsocks,

    Thank you so much for your reply. It has actually made me feel a lot better. Sometimes I do get down about what I am and how I act. But you know what, you're right, we are what we are and we only live once. I'm bound to have my bad days, obviously, but I am also going to have many good days. Thank you for replying, I am very happy that I can talk to someone else other than my parents about my worry's. I dislike stressing them, so this forum is the next best thing. I enjoy it and I hope I'm not being a pest!

    I am extremely grateful for your reply. Thank you Recombinantsocks.

    Kind regards,

    Matthew.

  • Former Member
    Former Member

    Hi Matthew,

    There aren't as many brave people in the world as you imagine! Most people, including you and me, your parents and most NT people, get scared and worried about all sorts of things. Ask your dad if he worries about your gran and all of the other things going on. I bet that he isn't enjoying it any more than you could expect him to.

    Don't be so hard on yourself, think of the things that you CAN do, think of all the things you have learnt from your parents.

    Growing up isn't easy for any of us. Gradually we discover more and more things that happen in the world. Some of it is not nice but lots of things are amazing. Try and think of the amazing things that people have done - we have got people to the moon and back, we are curing all sorts of diseases and life is full of lots of things that we can do.

    Ask you mum and dad about how life was when they were growing up. No colour TV?, certainly no internet, cars that used to break down every week. I'm sure they can tell you lots of things that have got better in their lifetime and you every right to know that things will get better and better through your life.