My son is currently in the last year of school and has just had his 18th birthday. We’re in the process of navigating what will be the next steps for him.
For information my son is non-verbal, cannot read or write, cannot dress himself, wash himself… the list goes on…
we are getting very limited support from the PFAL and we feel like the responsibility is on us to find the right setting for him once he leaves his current school. As you can imagine. For us as parents this is a stressful and worrying time. We are having to wait for budgets to be approved, we have lost respite while the red tape is being sorted. It feels like stress upon stress.
one area that is a particular area of confusion is where we need to manage his finances. This includes things like his child trust fund and his benefits. He does not and never will have the mental capacity to manage anything like this. But we are not sure what we need to do.
Is there anyone on here with previous experience or does anyone know of people we can talk to for help and support?
Thanks in advance