Introduce yourself (part one)

I have autism not good with joining things or general chit chat quite a recluse ( have asked for help with this none given or offered) i am also dyslexic and physically disabled mostly bed bound and registered deaf  multi allergy’s had polio when small. and unable to get care of any kind feeling very frustrated with lack of understanding where I live and lack of dignity in my situation I am shutting myself off from the world and getting in a right pickle being left to fester is not good for me I have asked for help over the past few years because i can not afford to pay the answer is always no. my self esteem as taken a nose dive and i have the feeling i am thick all the time or not worthy as a person Sorry its a bit doom and gloom just really fed up of trying to fit in justso

Hi. I'm new, not just to the forum, but also to the idea of living with Aspergers. My partner has not been officially diagnosed, but I am convinced that he has Asperger's at least in a mild form. I have researched the features on the internet and he pretty much displays every one to a certain degree. It can be very difficult to live with and at times, he has hurt me (not physically) so much that I've been at the point of leaving. I do, however, love him very much and would like to support him if I can and learn to live with the bad times. I moved from 250 miles away to live with my partner, leaving all family and friends behind, so I sometimes feel very alone and miserable.

Hi

Welcome to the forum.  I am sorry but I have had to delete the link to your book as it contains personal contact information that the forum does not allow to be disclosed.  Please continue to post.  We would love to hear from you.

ColinCat

Hi, I have an ASD. I have a very tough time of it. If you would like to know about me please go to the link, it is a book I have written about my life. I could use some help and advice.

Hello 2006hildy

Welcome to the community

I'm sorry to hear about your worries - definitely sounds like you've come to the right place to chat with people who understand what you're going through.

Since this is such a long intros thread, people who might be able to identify with what you're talking about may be less likely to read this. I think it would be a good idea if started off a new discussion - the Parents and carers section might be the best place. You can do that using the link below:

http://community.autism.org.uk/node/add/forum/1397

Looking forward to hearing more from you.

Sandra - mod

Hi,

I have a gorgeous little boy aged 5 who I love with all my heart with ASD CARS rating score 32.

I am here with my glass of wine in tears feeling sorry for myself. boohoo

What I am really angry about at the moment is:

Going in the playground of his mainstream school dropping/picking up and feeling as though we don't exist or as if we are dirty.

After school clubs insist he has a carer with him, so he might as well be banned.

I have decided to give up my career to look after him as a Carer. I want to look after him but mourn my career and the money that comes with it.

I am always told off for what poor G does - somebody give me a break.

He really is no trouble at all except when his ASD gets in the way - much better than his neurotypical brother.

I think we have been lucky with his mainstream school his teacher and LSA love him. It's just all too positive but in the cold light of day objective results show he is failing miserably.

Whaaaaaa.

Hi clacker

Welcome to the forum.  I hope that you find lots of help and support here.  I have two teenagers, one with Asperger's and one without.  Living with the teenager without Asperger's is like trying to paddle a canoe with a sieve!!!! The teenager with Asperger's is so easy compared to his sister!!!!

ColinCat

Hi  I am a mum of three and i have a son 10 who has mild ASD diagnosed and a daughter of 15 who has aspergers undiagnosed, I have joined the community to also get a better understanding of Autism and Asperges, and some advise on teenagers!

hi iam new to the group my son is eight and has aspergers.we have been having such a bad time lately at his school.he is so unhappy and not progressing well.we are debating wether to home school him.Has anyone home schooled their child and how did they cope was there any support.

Hi matt, welcome to the community :)

So sorry to hear about how your son's school has acted. You may want to take a look at the education section of the forum, I think you'll find other parents facing similar decisions who you might want to discuss the issues with.

Hi Lindsay we as a family are new to this group.I would jusr like to say how right you are about teachers not having enough training and information about children with Autism.My son is eight years old and has aspergers and at the moment in a main stream school, he is so misunderstood in there it beggers belief.The way he is treated and spoken to by staff is disgusting.We have just decided to home school him.Personally i put it down to ignorance and the actual personality of the teachers.Alot of people we have met are genuine,sincere,understanding.The damage they have caused him we have had to constantly pick up the pieces.

I'm a Mom of two lovely children. I have a lovely biy who is 5 and my gorgeous girl is 7. My 7 year old daughter has autism. I say this although it hasn't as yet been diagnosed but has been prevelant since she was two. We are about to start the diagnostic process any day now (awaiting first appointment). We do have an appointment tomorrow with our local mental heath team as my daughter went through a suicidal phase. I wanted to join the community for some advice and support through the process. This is our second time of getting my daughter assessed. The first time (when she was around 3 yrs old) we were told that she presented with Autistic traits but was very imaginative so they left her case open for a year. As she has aged the deficit (in some respects) between herself and her peers is huge and makes everything more apparent and I am desperate for her to receive the help and support she needs.

I think that just about covers everything! Personally, I'm a dog person, I enjoy cooking, baking, reading and studying!

:~)

My name is Lindsay and I am currently in my last year of teacher training. I have had 2 teaching practices so far, both of which I have had pupils with Autism in my class.

I have joined the community in order to enhance my understanding of Autism as a whole and develop my ablity to include children with Autism more in the education system. I don't believe as trainee's we are provided with enough insight and information about children with Autism and are therefore unprepared when it comes to teaching them; I have experienced this feeling twice now and do not feel it is fair on the child.

I have started a discussion about problem solving in maths and the difficulties those with Autism face surrounding the topic. Any feedback would be greatly appreciated!

My younger sister is 13, and has ADHD and learning difficulties, and when reading about autism, i realised she has a lot of autistic characteristics too! 

I just want to say, as I'm sure everyone who has a friend or family member with autism would probably agree with, that even though it can be tough to deal with and takes up a lot of time and effort, I wouldn't change the way my sister is for the world. 

Hi, I'm Kath. I am a mother of an 18 year old lad with ASD. He is having some problems at the moment but it has all come to an head and hopefully we have broken the back of it now. I think we can see a way forward.

I have looked at some of the posts in the forums and  I really feel for those of you who are fighting for your young children and trying to get them in the right educational environment with the right provision. It can be a nightmare - I know.

Looking back though, I can also remember the slightly confusing or the funny side of things. Before my son got a diagnosis I was forever being called in and told off by his teacher. I was called in on day 3! Why? She had asked the children if they knew what an umbrella was. My 4 year old replied quickly saying that it was a device for holding off the rain. I asked her what was wrong with this answer and she rudely told me that 'NO' child calls an umbrella a 'DEVICE'. Well mine did, and I was rather proud of his answer. To this day I don't know what she expected me to do about it!

On another occasion I was called in and sat at a table. The teacher picked up a pile of painting and turned them over one by one - all 24 of them - and she insisted that I took a good look at them. She had asked the children to take note of what they saw on the way to school and then to paint a picture. All the paintings were lovely - houses, gardens, trees, little flowers and a big yellow sun in the sky. Finally, she turned over my child's drawing and much to her displeasure I laughed uncontrollably. I couldn't help it. He had drawn a very detailed diagram of the drainage system and connected it all up underground.  I thought it was brilliant! He was different. I already knew that and I didn't need her to keep pushing this in my face. The other children couldn't have drawn that diagram if they had tried!

Our children think differently and they teach us to think differently too! It wouldn't do if we were all the same, would it?

Hello Bessie

Welcome to the community - I hope you'll find it interesting.

Sandra - mod

hi,

im a stay at home mum of 4.

 2girls.our 2 boys have aspergers (16 and 11 years)with lots of ups and downs.

spare time;we have 2 ponies, 2 dogs,2 rabbits,chickens,which all help our children,our 11 year old started talking when we got our first pony.

 we go to church(help preach),love music reading.enjoy a full life,grow our own veg.

My husband is not a plumber- but is a local postman, helping santa at the moment.

Welcome to the community Hearty Soup,

We hope that you find it useful and supportive being here.  You may find it helpful to start a new discussion elsewhere in the community where more people are likely to see it and you may get more responses.

Alex - mod

This is all very new to me and I'm hoping to find advice and support from the people who know. I am married to a man with Asperger's and it's often very difficult and lonely. We need help and I'd be grateful to anyone who can point me in the right direction.