cronic pain and Audhd

Hi, I've had a couple years where pain has featured more .  I've always had a weird sensation pain with my legs and now I have OA whenever I've bought it up at the GP its now put down to that. So kind of lived with that.  A couple of years ago my stomach ended up in my chest cavity, and from there  I have (?post operative) Gastroparesis which has given great pain particularlybefore the 'correcting' op and in flare ups. With GP opiods etc are no good as they make the GP worse.  I think that sometimes I cant describe the pain or appreciate the level of pain so in the past have over done things. I think sometimes living with these things and they become the norm, it's hard to know when its bad and you question yourself or what you think you are feeling, hard to explain. 

i try to calm down now - I understand you 100% - every sentence means a lot

I agree with how it is difficult to keep your mood up and I think because things are constant that it leads to self doubt, for example whats real, whether its imagined,, how bad it is or isnt, why others dont seem to experience things like you do. In my case I am not sure sometimes what pain I feel, similar to my uncertainty with emotions really although thats completely different. I dont really have any coping strategies.  Is it an option for you to discuss Pain Clinics with your doctor?

Dear Unsure and the TheCatWoman !

Thanks so much for writing to me!!! I’m really sorry that both of you are going through this kind of pain. Reading your messages and recognizing myself in them meant a lot, and it really helps to feel understood.

I used to work with my hands, alongside wood conservators, and it was very, very good for my AudHD. I wasn’t diagnosed at the time, but I do remember how calm it made me feel. Unfortunately, I overworked, and we didn’t have proper safety protocols, even though we were constantly using tricky machines. Since 2022, both of my hands have been in constant pain.

Last November, a hospital that works with chronic pain patients told me they couldn’t help me because they think I have ASD. So I started the diagnosis process at a private clinic, since the waiting time in the public system is about four years. It turns out I have ADHD, and some doctors say I also have ASD — so I guess I’m AudHD.

Now I’m trying to find online live meetings with peers who also live with chronic pain. I fonly ound a really nice site for people with ADHD (https://app.deepwrk.io/), which has an amazing and kind community, and it’s great to have some structure but they don't understand cronic pain.

I’ve found several organizations about pain (I’ll send you the links once I’m sure they’re good), and I’m trying to get into them. In the meantime, I joined an ADHD support group here in Hungary, which is really lovely, but it also feels a bit confusing to be there while dealing with constant, intense pain.

I know about fibromyalgia — here in Budapest, they also use hypnotherapy for it. And a patient mentioned also matcha and light streching and journaling and kurkuma (turmeric).

For my hands after trying many conservative rheumatology treatments, manual therapy, laser therapy, and even spending a month in the hospital without improvement, I finally found a pain specialist who offers PRP injections. My blood test is okay, thanks for the info!

My GP said, “pain is subjective,” and that was the extent of her help. It felt quite humiliating.

i am reading stuff here: www.retrainpain.org/about

I hope you have a lovely evening - or at least a medium pain evening and I will re-read your letters so I don't loose hope!!!!!!!!!!

Dear Unsure and the TheCatWoman !

Thanks so much for writing to me!!! I’m really sorry that both of you are going through this kind of pain. Reading your messages and recognizing myself in them meant a lot, and it really helps to feel understood.

I used to work with my hands, alongside wood conservators, and it was very, very good for my AudHD. I wasn’t diagnosed at the time, but I do remember how calm it made me feel. Unfortunately, I overworked, and we didn’t have proper safety protocols, even though we were constantly using tricky machines. Since 2022, both of my hands have been in constant pain.

Last November, a hospital that works with chronic pain patients told me they couldn’t help me because they think I have ASD. So I started the diagnosis process at a private clinic, since the waiting time in the public system is about four years. It turns out I have ADHD, and some doctors say I also have ASD — so I guess I’m AudHD.

Now I’m trying to find online live meetings with peers who also live with chronic pain. I fonly ound a really nice site for people with ADHD (https://app.deepwrk.io/), which has an amazing and kind community, and it’s great to have some structure but they don't understand cronic pain.

I’ve found several organizations about pain (I’ll send you the links once I’m sure they’re good), and I’m trying to get into them. In the meantime, I joined an ADHD support group here in Hungary, which is really lovely, but it also feels a bit confusing to be there while dealing with constant, intense pain.

I know about fibromyalgia — here in Budapest, they also use hypnotherapy for it. And a patient mentioned also matcha and light streching and journaling and kurkuma (turmeric).

For my hands after trying many conservative rheumatology treatments, manual therapy, laser therapy, and even spending a month in the hospital without improvement, I finally found a pain specialist who offers PRP injections. My blood test is okay, thanks for the info!

My GP said, “pain is subjective,” and that was the extent of her help. It felt quite humiliating.

i am reading stuff here: www.retrainpain.org/about

I hope you have a lovely evening - or at least a medium pain evening and I will re-read your letters so I don't loose hope!!!!!!!!!!