cronic pain and Audhd

Hi everyone,

I’m living with chronic pain and was recently diagnosed with AudHD. Lately it’s been hard to stay active and keep my mood up, and I’m hoping to connect with others who understand what it’s like to live with AudHD and chronic pain.

I’d really appreciate any advice, tips, or even just the chance to chat with people who get it. I’m happy to listen or join discussions at my own pace — I don’t need to talk a lot.

Thank you for any support or guidance you can offer!

Parents
  • Hi, I've had a couple years where pain has featured more .  I've always had a weird sensation pain with my legs and now I have OA whenever I've bought it up at the GP its now put down to that. So kind of lived with that.  A couple of years ago my stomach ended up in my chest cavity, and from there  I have (?post operative) Gastroparesis which has given great pain particularlybefore the 'correcting' op and in flare ups. With GP opiods etc are no good as they make the GP worse.  I think that sometimes I cant describe the pain or appreciate the level of pain so in the past have over done things. I think sometimes living with these things and they become the norm, it's hard to know when its bad and you question yourself or what you think you are feeling, hard to explain. 

  • i try to calm down now - I understand you 100% - every sentence means a lot

  • I agree with how it is difficult to keep your mood up and I think because things are constant that it leads to self doubt, for example whats real, whether its imagined,, how bad it is or isnt, why others dont seem to experience things like you do. In my case I am not sure sometimes what pain I feel, similar to my uncertainty with emotions really although thats completely different. I dont really have any coping strategies.  Is it an option for you to discuss Pain Clinics with your doctor?

Reply
  • I agree with how it is difficult to keep your mood up and I think because things are constant that it leads to self doubt, for example whats real, whether its imagined,, how bad it is or isnt, why others dont seem to experience things like you do. In my case I am not sure sometimes what pain I feel, similar to my uncertainty with emotions really although thats completely different. I dont really have any coping strategies.  Is it an option for you to discuss Pain Clinics with your doctor?

Children
  • I live with chronic pain and have done or years, I take high strength curcumin (turmeric) capsules and they do help, I tried not taking them and within two or three days was desperate for them.

    I do as much as I can, then stop and rest. The amount of pain changes oth seasonally and randomly so on good days I do more and bad days I do less, or rather I do different things, like read and study. I batch cook, so that on bad days theres something in the freezer..

    I had a referal to the pain clinic which didn't go very well at all, I'd been before and they couldn't do anything for me, but this time I was going with a different problem, I think the person I spoke to was just one of those horrible people you sometimes come across in healthcare settings. Our's only do pain killers, and referals to gyms and for physio, gyms don't want me because as soon as they hear I have OA they can't get me out of the door fast enough in case I injure myself there, I'm allergic to painkilers except paracetamol and I've had physio and gained little help from it. I have a dog and walk her daily, I do find getting out in the fresh air help and the exercise gives me an endorphine rush which helps me though the rest of the day. But just because I had a negative experence shouldn't stop you from trying one, you might have a much better experience, I think a lot of it depends on why you're in so much pain?

    I'm seeing a traditional accupuncturist on wednesday in the hope of getting some help, a lot of my pain is from fybromyalgia which is difficult as theres no treatments and little understanding. I see an osteopath when the OA in my back plays up and he's a great help, I've also had massage and reflexology which are brilliant, just expensive.

    It's really worth talking to your GP and having some blood tests for things like B12 and vit D deficiencies, both make you feel really horrible, I was really worried about myself at one point, wondering if I had luckemia or something equally horrible, I was amazed that it was vitamin deficiencies as I have a good diet, but B12 can be an absorbtion problem and few of us get enough vit D.