selecive mutism, anxiety in daughter

Hi there

My daughter who is 5 has always struggled socially with other children. She has been in school since age 3 but still does not talk to any of the other children. We expect she will soon be on the pathway to diagnosis as teachers agree she has ALN (autism and suspected ADHD - as well as selective mutism). In school she presents as very anxious and does not talk to other children, but does now talk to familiar adults (teaching assistants mostly). She has not even seemed to mind not being able to talk to other children, but is now occasionally saying she doesn't know what to say to them, and that she has no friends, which is upsetting.

She is taken to a few extra curricular activities outside school where she really enjoys herself, seems more at ease (with parent accompaying her) but still only talks to the adults and not with the children at all. 

I am really starting to worry about her as she seems to have low self esteem, she is also highly sensitive in that she feels rejection strongly. At home she is very controlling and needs constant one to one attention, which is difficult as she has a younger brother. I think she is showing signs of PDA also - she cannot abide being told 'no', and she must be right at all times and cannot be corrected without getting very frustrated.

Unfortunately we don't meet up with friends with children very much as we don't live close to them. I sometimes wonder if it might have been easier for her if we had friends that we meet up with frequently, but I find meeting up with friends difficult anyway as my daughter really resists any kind of socialising.

I am finding it hard to know how to help has as I am also autistic .I also recognise that I have also suffered with selective mutism myself which I have never had help with.

She doesn't have particularly strong interests but she does love sensory activities and being outdoors.

Not really sure what I'm looking for but any advice or experience particularly with girls with selective mutism, would be great. Has anyone got any experience of therapies with SM? What has helped?

Thank you X

Parents
  • What you're describing here IS the autistic difference. We tend to make friends with much older or younger individuals. When young, adults who appear dependable and stable are much more enjoyable to speak with. Due to not maturing with peers, we might simply observe until we can work out how to engage. 

    One's self esteem is developed over a long period of time. At her age, she's yet to learn to recognise her rich, wonderful and wild self, understand her human flaws, laugh at her control issues (we all have them), see the parts still in development, approve and respect her own nature and self-discipline with reason, her own growth so to better use agency to assert boundaries, understand what is human in another and make grounded choices which, in turn, reinforce a sense of being and contentment with the self. 

    At 5 we are still making sense of the world, but even sometimes still at 50 :) 

    If a child appears controlling on the surface, it means they are experience something which feels dangerous, could sweep them away, beyond their control and trying desperately to navigate. Or they might have a pre-envisioned plan which they are looking to resolve or fulfil and it's important to make room for this, even envision it with them, so you can feel a little more in control if need be. With young children, we need to always provide more time than we think for transitions, as they cannot handle smash-cut interruptions. Very few things are of consequence. 

    Children can never actually be controlling, rather looking to us for respect, protection and aid. Rather, old chaps in charge of banks are controlling. I rarely said no to my son on my grandmothers advice. So when I did, he took it seriously. 

    Her asserting a need for one to one is actually brilliant. It is part of her ability to focus and you'll want to reinforce and always affirm this. And then help her learn to steer / temper / direct it as she grows. For autistics, if we are vigilant about doing everything one-thing-at-a-time, we will find a better flow and avert harm. We function better like this. What you'll need to do is reinforce her worth while managing her expectations. So, if she needs to speak to you while you're on the phone, ask the individual you're speaking with for a minute. Focus on the child and tell them "I want to listen, you're important. And first I need to finish this. Give me (an exact amount of minutes) and then I can focus on you." Then make sure to follow through to the exact minute. This helps them learn to trust you. It teaches them how they will eventually act in a similar situation when older. 

    The term "Aut" in Autistic means Auto, autonomous. It was conceived by Grunya Sukhareva. 

    My self-esteem has been grown in part as I take control - or rather - responsibility - for my own life, for my own research in understanding the physical and social world. In short, the library has aided my self-esteem. Good mentors and teachers have helped grown my self esteem, while peers around are busy trying to 'fit in' with a Neurotypical social/tribal and often Freudian "neurotic" mode of being, it is wisdom and sound guidance, building ethics and aesthetics that has crafted mine, along with learning to integrate my actions, words and deeper truths / intents of the self. And then there is the never ending immersion in creative and spiritual endeavours which grow contentment and ease of self. I have so much to learn and my being isn't fulfilled in the ways my non-autistic friends need. 

    Perhaps your daughter is perfect for you to invite over your single friends. The ones without kids. It sounds to me like she has a good sense of self. I don't know anyone who likes rejection, so her response is appropriate. The intensity of the response is autistic - we sense-perceive everything with a greater impact, internal and external. This is one defining feature and can work for us along side knowledge. The quicker our response, the better. As she grows she may begin to realise she doesn't actually want to be friends with just anyone. And that's a good place to be. 

Reply
  • What you're describing here IS the autistic difference. We tend to make friends with much older or younger individuals. When young, adults who appear dependable and stable are much more enjoyable to speak with. Due to not maturing with peers, we might simply observe until we can work out how to engage. 

    One's self esteem is developed over a long period of time. At her age, she's yet to learn to recognise her rich, wonderful and wild self, understand her human flaws, laugh at her control issues (we all have them), see the parts still in development, approve and respect her own nature and self-discipline with reason, her own growth so to better use agency to assert boundaries, understand what is human in another and make grounded choices which, in turn, reinforce a sense of being and contentment with the self. 

    At 5 we are still making sense of the world, but even sometimes still at 50 :) 

    If a child appears controlling on the surface, it means they are experience something which feels dangerous, could sweep them away, beyond their control and trying desperately to navigate. Or they might have a pre-envisioned plan which they are looking to resolve or fulfil and it's important to make room for this, even envision it with them, so you can feel a little more in control if need be. With young children, we need to always provide more time than we think for transitions, as they cannot handle smash-cut interruptions. Very few things are of consequence. 

    Children can never actually be controlling, rather looking to us for respect, protection and aid. Rather, old chaps in charge of banks are controlling. I rarely said no to my son on my grandmothers advice. So when I did, he took it seriously. 

    Her asserting a need for one to one is actually brilliant. It is part of her ability to focus and you'll want to reinforce and always affirm this. And then help her learn to steer / temper / direct it as she grows. For autistics, if we are vigilant about doing everything one-thing-at-a-time, we will find a better flow and avert harm. We function better like this. What you'll need to do is reinforce her worth while managing her expectations. So, if she needs to speak to you while you're on the phone, ask the individual you're speaking with for a minute. Focus on the child and tell them "I want to listen, you're important. And first I need to finish this. Give me (an exact amount of minutes) and then I can focus on you." Then make sure to follow through to the exact minute. This helps them learn to trust you. It teaches them how they will eventually act in a similar situation when older. 

    The term "Aut" in Autistic means Auto, autonomous. It was conceived by Grunya Sukhareva. 

    My self-esteem has been grown in part as I take control - or rather - responsibility - for my own life, for my own research in understanding the physical and social world. In short, the library has aided my self-esteem. Good mentors and teachers have helped grown my self esteem, while peers around are busy trying to 'fit in' with a Neurotypical social/tribal and often Freudian "neurotic" mode of being, it is wisdom and sound guidance, building ethics and aesthetics that has crafted mine, along with learning to integrate my actions, words and deeper truths / intents of the self. And then there is the never ending immersion in creative and spiritual endeavours which grow contentment and ease of self. I have so much to learn and my being isn't fulfilled in the ways my non-autistic friends need. 

    Perhaps your daughter is perfect for you to invite over your single friends. The ones without kids. It sounds to me like she has a good sense of self. I don't know anyone who likes rejection, so her response is appropriate. The intensity of the response is autistic - we sense-perceive everything with a greater impact, internal and external. This is one defining feature and can work for us along side knowledge. The quicker our response, the better. As she grows she may begin to realise she doesn't actually want to be friends with just anyone. And that's a good place to be. 

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