Published on 12, July, 2020
Hello all.
I've a 2 1/2 yr old daughter awaiting the ASD assessments. So far all we know is she is "likely to be on the autism spectrum". So much information out there I feel overwhelmed, confused and rather incompetent! Anyone else feel like this?
My 3yr old daughter was diagnosed today with asd & it's both a relief to know we weren't imagining it but scary, daunting & upsetting!!! My whole life has been without a family member having a mental disability & now to find out my daughter does is almost heartbreaking as I'm so scared of what the future holds for her & the struggles we as a family will face. I get what you mean torious23 as we were also told that if she needs more speech therapy to get in contact with them & that they're also going to get the early years improvement advisor more involved but what I feel I need is someone to give me exact instructions, follow this, try this, read this article only, it is so overwhelming!!!!
Me neither to be honest. All this waiting around for appointments is a nightmare. Early birds which is apparently very good isn't done in my area. Apparently I may be entitled to nursery funding however without the official full diagnosis I can't have this funding yet. I ended up sobbing down the phone yesterday when told I'd have to wait until October to see a dietician (my daughter has hyper sensitivity and gags and vomits most foods) which was supposed to be an urgent appointment! Clearly the woman felt sorry for me and my apparent basket case response as she phoned me back with an appointment for July.
I have a 12 and 14 year old as well as my 2 yr old. In 14 years as a parent I have never felt so ill equipped and useless. Completely out of my depth!
Lots of people have suggested this site for info and I've read a ton of other stuff however all I have succeeded in doing is confusing myself and overloading myself with information that I now cannot put into practise.
I've cried a lot. Spend most of my days angry, scared and am now somewhat anti social. I've no tolerance for people!
I am hoping it gets better with understanding!
My 6 year old son was diagnosed with ASD back in April, I kinda got told and then left to it, I Feel useless what do I do? Sounds daft but I've been told my son is special needs and I don't know what to do with this information!