I'm New & Need Advice

A little bit about me.

I have a form of autism called Asperger Syndrome. For those unfamiliar with this condition, visit here: www.autism.org.uk/.../asperger.aspx.

I was only recently diagnosed with Asperger Syndrome. Throughout my childhood and while I was growing through to early adulthood, I experienced the symptons of Asperger's, although at the time I just thought I was socially inexperienced and I didn't think that I had a problem at the time. When I attempted to 'socialise', I found it etremely difficult and I was just quiet and 'pretended' I was doing something else so that I didn't look stupid.

Troughout my adulthood (and quite recently), my Asperger's has manifested from social awkwardness into complete isolation from other people. I even become anxious when someone I dont know comes near me, and I really struggle when there are groups of people.

I live 300 miles away from my family, so I am dealing with this condition on my own with no help what-so-ever, and I've come to the point where I need to get support or I'm going to severely struggle to care for myself.

One of the things that I really struggle with this condition is job interviews. People give me advice on 'how to calm my nerves', but for me it's more of a phobia; where some people's phobias are height, snakes etc, mind is socialising and job interviews. It gets to the point where my vision is blurred, difficulity breathing and I experiencing slight panic attacks.

People tend to judge because Asperger Syndrome isn't visible on the outside. For example, I'm currently claiming JSA and my advisor at the job centre is a real bully. She has already made the prejudicial opinion that I'm lazy and I have noreal problems, even though I have an official diagnoses of autism. She forces me to go into job agencies and 'talk' otherwise my claim will be sanctioned. For those of you who don't know what Asperger's is like, when one has axiety with people,it can induce panic attacks and affect your health. This is why I'm considering signing off and applying for ESA, because I cannot cope with theseanxiety attacks anymore.

ESA probably isn't an option either as I've heard some real horror stories with DWP and ATOS, and you have to be severely incapacited to be considered incapable of working. Like unable to pick up a kettle etc.

Life kinda sucks with zero help for my condition. I'm expected to cope on my own (I live alone), and when I do struggle to go to job interviews (I'm scared of those things), I will get sanctioned, which means less money, which will in turn affect my physical health. Oh, I forgot to mention, I suffer from Perthes Disease too, which affects my hips.

Any advice will be appreciated.

  • Pride, you have received very good advice from others here but I just want to add one thing. That is, in the final analysis, you have to learn to be your own best friend. What I mean by that is to accept yourself, without judement, and to use self-talk to try to guide your reactions when they seem to be getting out of hand. I know that sounds pretty glib but really, this is the main purpose of CBT, where the therapist attempts to change the way somebody thinks about their life and the way they behave. In other words, we have to turn to our 'wise' self in order to navigate our way through life. I don't mean become self-obsessed about our every action but when we feel we are floundering over some situation to try to step back and look at ourselves and the kinds of reactions our disorder tends to make us do, as someone else might look at us, and try to take a middle course. I find that it's useful to try to make myself slow down in order to allow me some thinking space because a calmer mind is generally better able to think more effectively than an agitated one. This isn't easy and has to be practised and, I think, tends to come with age and maturity but in the final analysis we have to be our own best friend, something that is the aim of therapy. 

  • @caretwo: that's an excellent post with lots of options. Options are good. I am struggling with the disclosure issue - I have mentioned it in some interviews and then not got the job - I disclosed it in the health pre-screening for my last job but ultimately realised that I was in the wrong job and packed it in as it was destroying me. It was the nature of the work rather than the people that was wrong in this case.

    @LMW: you have distilled the essence of CBT, and trying to be your own best friend, in your post. Sometimes, a best friends job is to challenge you to do things differently and challenge is an essential part of CBT.

    @40S I think I will try and remember to write down the questions in my next interview. Writing the question down might give you thinking time and help you slow down which is a thing that LMW mentioned. I'm aware that it is a good idea to "think twice and speak once" but often don't manage to do that in practice. Good luck with your interview on 15/6.

  • I think that's great advice, lostmyway, but in practice you're right, it is sooo hard, especially when you see things from a certain standpoint.  I have always found it difficult to see things from another perspective and and think my way is the best way.  It is, of course, the best way for me sometimes, but not the only way.  Age and maturity do bring insight and experience and a guiding voice can open your eyes.  

  • I'm sorry to hear you've not been well enough to be applying for jobs, caretwo.  Pride, hopefully some of the tips in these comments will be helpful. I did once go for an interview and they gave me the interview questions written on cards that I could hold and refer to.  It really helped me to make sure I was answering the questions as best I could by having them written down in front of me, as I find that helps.  

    One thing I've also tried in the past is taking a pen and paper in with me and writing the questions down as they are asked, so that I can remember and refer to them.  I've not had this request turned down before, and haven't made any disclosure about any adjustments needed to the interviewer.  I think most employers would rather the person sat in front of them can do the best they can. 

    I've also found cognitive-behavioural therapy (CBT) really helpful, and my GP has referred me in the past in regards anxiety / depression.  It can challenge rigid thinking, anxious feelings and help replace these with more positivity.  It's a challenge though, I do understand.  I'm not working at the moment, but am hopeful that I will do my best when I next go for an interview (15th June). 

  • I'm sorry to hear you've not been well enough to be applying for jobs, caretwo.  Pride, hopefully some of the tips in these comments will be helpful. I did once go for an interview and they gave me the interview questions written on cards that I could hold and refer to.  It really helped me to make sure I was answering the questions as best I could by having them written down in front of me, as I find that helps.  

    One thing I've also tried in the past is taking a pen and paper in with me and writing the questions down as they are asked, so that I can remember and refer to them.  I've not had this request turned down before, and haven't made any disclosure about any adjustments needed to the interviewer.  I think most employers would rather the person sat in front of them can do the best they can. 

    I've also found cognitive-behavioural therapy (CBT) really helpful, and my GP has referred me in the past in regards anxiety / depression.  It can challenge rigid thinking, anxious feelings and help replace these with more positivity.  It's a challenge though, I do understand.  I'm not working at the moment, but am hopeful that I will do my best when I next go for an interview (15th June). 

  • I have not been well enough for some time to be applying for jobs but when I did no employer offered me a work trial. Work Choice representatives were meant to help me obtain work trials but they did nothing for me in that area.

    I believe the option to provide questions beforehand was a suggestion from what was the Equality Commission. No employer has done that for me.

    In my limited experience, I have found it hard to get potential employers to make reasonable adjustments which would really help (such as a work trial). The most successful request has been the asking of 'closed' questions, but even that proves difficult in practice as people lapse into 'open' questions.

    I still think asking for one or more of the reasonable adjustments I listed is worthwhile. In time, perhaps more potential employers will take notice.

  • I think the reasonable adjustments that you detail in your reply, caretwo, are really helpful. Have you had any employers take up these suggestions, such as a 2 week work trial or giving you questions ahead of the interview?  I have an interview coming up and I know I'd 'perform' much better if I were to have the questions beforehand to think about, and check out with my other half, about what they actually want to know

  • I would ask to see a Job Centre Plus Disdability Employment Advisor. My advisor has been helpful.

    Work Choice, on the other hand, was a terrible experience. Despite knowing I have Asperger's, I was treated as though I had learning disabilities (for example, I was asked if wanted to go to the toilet) and they kept changing agreements, meeting times, etc. Work Choice was meant to help me obtain work trials rather than interviews but did not do so.

    Regarding job interviews, I have an introductory document which is sent to the organisation upon being asked for an interview. The basic text of the document is shown below. If you think such a document may be of help, please feel free to use whatever you need in the text below.

    ---------

    I live with the condition of Asperger's syndrome which is a lifelong disability and mostly a 'hidden disability', that is, you cannot tell someone has the condition from their outward appearance.

    I, like other people with Asperger's syndrome, can make a valuable contribution to an organisation with the qualities we bring to a job, for example:

    • reliability;

    • conscientiousness and persistence;

    • accuracy;

    • close attention to detail and an ability to identify errors;

    • an ability to concentrate, without distraction, on a task for lengthy periods;

    • technical ability such as excellent IT skills;

    • detailed factual knowledge;

    • a high level of motivation.

    Asperger's syndrome is a high-functioning autistic condition which affects the way a person sees the world, processes information, and interacts with other people; this means they:

    • usually have social communication difficulties, for example difficulty with 'reading' non-verbal communication;

    • are likely to be anxious in unfamiliar situations;

    • may dislike physical contact.

    The key is to treat each person as an individual and avoid assumptions about their likely performance because they have Asperger's syndrome. For example I:

    • worked for XXXX for over XXXX years;

    • am capable of forming strong working relationships (more than XXXX years after leaving XXXX, I am still in contact with a number of ex-colleagues);

    • have received acknowledgement from all my managers of my ability to train and help develop team members.

    Owing to the difficulties people with Asperger's syndrome face in communicating, I am unlikely to put myself forward well in an interview. Some of the problems I may face are:

    • finding it hard to think in abstract ways or considering 'what if?' scenarios;

    • being more comfortable with facts than hypotheses;

    • difficulty in judging how much information to give, especially if questions are 'open';

    • demonstrating enthusiasm for the role;

    • a general difficulty in 'selling' myself to potential employers.

    In order to prevent me being discriminated against within an interview because of my disability, I would like you to consider the following reasonable adjustments please:

    • a work trial (a two-way placement evaluation) or a practical test relating to the role instead of an interview;

    • an informal visit prior to the interview;

    • notification of the questions or selection criteria prior to the interview;

    • within an interview, please consider the following:

      • providing more time for the interview;

      • being aware I may interpret language literally, for example asking 'How did you find your last job?' may result in an answer like 'I found it in the paper and sent off for an application form';

      • the asking of 'closed', rather than 'open', questions, for example instead of 'Tell me about yourself', try 'Tell me about your last job and what it involved';

      • the avoidance of hypothetical or abstract questions, for example instead of 'How would you cope with lots of interruptions?', try 'In your last job how did you cope when people interrupted you?';

      • the asking of questions based on my experience;

      • letting me know if I am providing too much detail.

  • Hi Pride and wlecome to the community,

    I totally understand your problem with interviews. Having gone through yet another interview, without a clue about why I hadn't hit it off with the interviewer, was the trigger for me looking into autism as a cause. I have had loads++ of interviews over the years and still flounder when put on the spot as I struggle to list things off in a sensible order and I struggle to find a response to competency based questions (qive me an example of a time when you did such and such). There are things you can do to help with this but ultimately it is likely to be a struggle and I have come to accept that I will hit it off with some people but not others and I have stopped beating myself up when I don't get it right. It sounds like you have developed a real anxiety about it so you may benefit from some professional help...

    There is a scheme called Access to Work www.gov.uk/.../overview that provides assistance for people in your situation. They will provide assessment and help in getting a disabled person into work. A diagnosis of autism was readily accepted as qualifying for the scheme when I rang them to get help and they were very friendly and helpful. They will fund various interventions and I wonder if they would fund some intensive help with your interview issues? They will send out someone to work out what help might help - they do see this as an opportunity to get people into work and off benefits so there aren't the same pressures on spending that you have hit with other benefits.

    I haven't heard of Perthes disease but I wonder if something like that is the cause of my own degenerative hips. I have just had a complete hip replacement at the age of 58 which I thought was too young for such a procedure - the operation also cured me of my phobia with hospitals so I got two benefits for the price of one!