New and Confused

Hiya all :) 

My name is Sarah im 25 and a single mum to Kyle (5).  Kyle got diagnosed with autism spectrum disorder today and im unsure whay happens next and where we go.  Been a whirlwind day and now its all calmed down i dont know who to turn to etc...  

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  • Former Member
    Former Member

    Hi Namo,

    Welcome to the forum!

    I'm really glad that you have found something that works for your boy. Diet is sometimes discussed on the forum and I am interested as I think that it is a factor in some peoples ASD. Could I urge a bit of caution and proportion that what works for your child may not work for other people's children. Autism is a complex condition and many of us have simply inherited the condition rather than it being due to something like a food allergy.

    The OPs question didn't really relate to how the condition is caused but was more about how the process works after diagnosis.

    if you want to look into what has already been said on diet, and contribute to threads on that then perhaps you might find something interesting from this search...

    http://community.autism.org.uk/search/node/diet

  • Yes it came as a big shock to us! We had tried having a baby for 6 yrs before we finally had him. He was perfectly normal when he was on neocate formula which was prescribed by the specialist. Met all his milestone! his food intolerances got worse only after solids. I had a gut feeling something wasn't right and kept telling the doctors his diarrohea issues and constipation but to no help from them!

    it was only when he statred throwing up very frequently, catching infections that we got quite worried. He also in a matter of a few months just after his 2 nd birthday starting avoiding eye contact, looked more spaced out and became very picky at eating. He got worse and started the repeated stimulations, obsessively countine and not a able to tolearte any social activitities that lead us to finally digging deep. I am so relieved that finally I have my baby back, he's flourishing on the diet within a week! It was easier for us I guess because of his age he couldn't resist the food if he got hungry.

  • Thats really interesting that your son had behaviour change related to his dairy intolerance. I will look into this diet idea, thanks both of you.

  • Hi Sarah, I am new to this forum aswell and have a 24 month old son who began to exhibit very strong autistic symptoms Recently.  He has been diagnosed with dairy intolerance when he was just 10 months old and has pronlems with delayed development ever since solids were started. He was a cheerful, happy baby up until then With plenty of eye contact and verbal interactions. Fortunately we became aware of the new autism research which links it to gut-brain connection.

    we have managed to successfully treat with the specific carbohydrate diet which include elimination all carbs strictly. Please visit the website 'breaking the vicious cycle.info' by Dr Elaine Gottshchall

    and you will read a wealth of information that can possibly save your child with just a pure change in diet. if you google gut brain connection you will see latest news reports linking this exact theory to autism in recent days. All the best, and hope this helps your little one!

  • Former Member
    Former Member

    Welcome!

    What happens next depends on what problems he/she has (sorry, is Kyle a boy or girl?). He may get extra help in school. There are courses that you can go on to help you learn some things you can do to help him at home.

    www.autism.org.uk/.../parent-seminars-and-workshops.aspx

    Do you understand why Kyle was diagnosed? Did school think there was a reason for it? Does it make sense to you? Do you have any questions?