• Replies 5 replies
  • Subscribers 68 subscribers
  • Views 605 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

hi!

toothless

hi everyone,

am em/emma,age thirty,and am severely autistic and have mild intelectual disability amongst other stuff.

am interested in disability sports and am an athlete for the special olympics plus do adapted cycling on a athletics track,am also interested very much in animals, using the internet, photography,gaming [but am very bad at it],writing a long time autism blog,autism & ID activism;have gone to demos and have worked with mencap to train hospitals on ID, and sensory rooms/soft play.

am not new to the NAS,was supported by them for many years four days a week;two to one outreach support and accessed a NAS day centre regulary,all on top of living in a neglectful abusive residential home,but was then transfered to a specialist severe and profound autism residential unit and was told coud not access the day centre any more because it was classed as double funding,was gutted as loved the place,have been to many day centres and think the NAS one was the best of all,the staff were the best as well; still keep in contact with them.

am now living in a purpose built supported living care home with two to one support which specializes in autism & intelectual disability,though have been the only resident since last year and now people are going through the transitions to move in am getting very stressed because have had the whole place to self and they are changing everything around without thinking of the impact it has on self,it has made the depression far worse though mine presents as severe challenging behavior as am unable to communicate or show it and people have always just blamed the autism and ID.

am due to see the pyschiatrist [who is part of the social services learning disability team] in one week so hope can hold on,the last time it got worse ended up detained in a learning disability acute hospital for four months.

anyway,thats mine. :D

  • Yes i agree emma is far better (sorry emma)

    I have read only 2 books on the actual subject of aspergers (one being the origional book by *Thomas Hans Asperger*??? (the translated version of course)

    The other one i cant remember, but it was also about aspergers and was a new publication about 7 years ago (all i remember is that i THINK the book was a dark *sea green* colour, with those *spiral* shell on the front cover???)

    The only other books i have read about helping myself have been the general ones like *Feel the fear and do it anyway* etc

  • Former Member
    Former Member

    Hi Barney,

    the book that i read when i was realising that i had ASD was "Living Well on the Spectrum" by Hilary Gaus. This helped me a lot in understanding the condition and it gives practical examples of things you can do. It's available on Amazon etc or you should be able to get it from the library.

    Emma, (much nicer name than toothless!) i'm intersted to know what books you've read too.

  • Welcome toothless and thank you for being as brave as you have.

    Although i have been in the system as *aspergers/asd* (it USED to be aspergers, but got updated to ASD last year) for many years (i was diagnose at 18 and am now 33) i have just *accepted* that i have a condition and have not really researched it to be honest, appart from a few pages of Hans Aspergers book (i can't remember the title) and a few self help books (which didn't help at all)

    My point is, do you have any books about autism, aspergers and ASD you could reccomend to me and the wife please?

    Sorry if have sounded convaluted (confusing)

    and once again welcome:

    Barney

  • hi recombinantsocks,thanks very much for the welcome and for the compliments on writing! was beginning to think was being ignored for some reason.

    am a user of a number of firefox addons which help with using alternative words to avoid posting the same vocabulary over and over, and also to understand what words mean when am stuck with them so it always appears better looking than the reality.

    the ID is diagnosed at a mild level,was actualy diagnosed as severely ID up until last year because they were always unable to seperate the autism from the ID, was detained in greenways intelectual disability hospital for four months last september for extreme chalenging behavior and they did a full ID assessment including a functional assessment,the hospital was hell but at least am now better diagnosed and treated.

    autism is a big interest of mine,so if ever need any help please just ask! am fairly up to date on the whole spectrum and hope to help people here as well.

    hope are not feeling depressed now? its a horrible illness along with all the attitudes we get for not being motivated or for being suicidal [eg, 'its selfish to do that as will leave behind a lot of people who are loved by'].

  • Former Member
    Former Member

    A really warm welcome. I read a few of your other posts and then came across this one this morning. I hope you will find us friendly on this site, sometimes we write first and think later but that's what happens with the ASD sometime! There's a mixture of people with different degrees of difficulties and in different states of mind so it might seem a bit strange at times. I hope you will find the advice useful and i think other people will find your advice helpful. You seem to really understand lots of the theory :-)

    You write really well and I was surprised to see your references to your ID. Sometimes our abilities get hidden because of the communication difficulties and sometimes writing things down can help your real thoughts to get out and be understood.

    i'm sorry to see that you get depressed. This is very common in the people on the forum. I've been through a few episodes and know how hopeless things can seem sometimes. i've also come through it ok and hope that i can see my way through it if it happens again. For me, this happened when i was really struggling to get people to see and understand my ideas. Now that i have been diagnosed with the ASD i have a much better understanding of what was going wrong. I've seen a few references to TOM and guess that i am getting this eventually (i'm 56 so i must be a bit slow on that one). I'll try and find the time to read ip some more on this.

    :-)