hi!

hi everyone,

am em/emma,age thirty,and am severely autistic and have mild intelectual disability amongst other stuff.

am interested in disability sports and am an athlete for the special olympics plus do adapted cycling on a athletics track,am also interested very much in animals, using the internet, photography,gaming [but am very bad at it],writing a long time autism blog,autism & ID activism;have gone to demos and have worked with mencap to train hospitals on ID, and sensory rooms/soft play.

am not new to the NAS,was supported by them for many years four days a week;two to one outreach support and accessed a NAS day centre regulary,all on top of living in a neglectful abusive residential home,but was then transfered to a specialist severe and profound autism residential unit and was told coud not access the day centre any more because it was classed as double funding,was gutted as loved the place,have been to many day centres and think the NAS one was the best of all,the staff were the best as well; still keep in contact with them.

am now living in a purpose built supported living care home with two to one support which specializes in autism & intelectual disability,though have been the only resident since last year and now people are going through the transitions to move in am getting very stressed because have had the whole place to self and they are changing everything around without thinking of the impact it has on self,it has made the depression far worse though mine presents as severe challenging behavior as am unable to communicate or show it and people have always just blamed the autism and ID.

am due to see the pyschiatrist [who is part of the social services learning disability team] in one week so hope can hold on,the last time it got worse ended up detained in a learning disability acute hospital for four months.

anyway,thats mine. :D

Parents
  • Former Member
    Former Member

    Hi Barney,

    the book that i read when i was realising that i had ASD was "Living Well on the Spectrum" by Hilary Gaus. This helped me a lot in understanding the condition and it gives practical examples of things you can do. It's available on Amazon etc or you should be able to get it from the library.

    Emma, (much nicer name than toothless!) i'm intersted to know what books you've read too.

Reply
  • Former Member
    Former Member

    Hi Barney,

    the book that i read when i was realising that i had ASD was "Living Well on the Spectrum" by Hilary Gaus. This helped me a lot in understanding the condition and it gives practical examples of things you can do. It's available on Amazon etc or you should be able to get it from the library.

    Emma, (much nicer name than toothless!) i'm intersted to know what books you've read too.

Children
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