hi!

hi everyone,

am em/emma,age thirty,and am severely autistic and have mild intelectual disability amongst other stuff.

am interested in disability sports and am an athlete for the special olympics plus do adapted cycling on a athletics track,am also interested very much in animals, using the internet, photography,gaming [but am very bad at it],writing a long time autism blog,autism & ID activism;have gone to demos and have worked with mencap to train hospitals on ID, and sensory rooms/soft play.

am not new to the NAS,was supported by them for many years four days a week;two to one outreach support and accessed a NAS day centre regulary,all on top of living in a neglectful abusive residential home,but was then transfered to a specialist severe and profound autism residential unit and was told coud not access the day centre any more because it was classed as double funding,was gutted as loved the place,have been to many day centres and think the NAS one was the best of all,the staff were the best as well; still keep in contact with them.

am now living in a purpose built supported living care home with two to one support which specializes in autism & intelectual disability,though have been the only resident since last year and now people are going through the transitions to move in am getting very stressed because have had the whole place to self and they are changing everything around without thinking of the impact it has on self,it has made the depression far worse though mine presents as severe challenging behavior as am unable to communicate or show it and people have always just blamed the autism and ID.

am due to see the pyschiatrist [who is part of the social services learning disability team] in one week so hope can hold on,the last time it got worse ended up detained in a learning disability acute hospital for four months.

anyway,thats mine. :D

Parents
  • Former Member
    Former Member

    A really warm welcome. I read a few of your other posts and then came across this one this morning. I hope you will find us friendly on this site, sometimes we write first and think later but that's what happens with the ASD sometime! There's a mixture of people with different degrees of difficulties and in different states of mind so it might seem a bit strange at times. I hope you will find the advice useful and i think other people will find your advice helpful. You seem to really understand lots of the theory :-)

    You write really well and I was surprised to see your references to your ID. Sometimes our abilities get hidden because of the communication difficulties and sometimes writing things down can help your real thoughts to get out and be understood.

    i'm sorry to see that you get depressed. This is very common in the people on the forum. I've been through a few episodes and know how hopeless things can seem sometimes. i've also come through it ok and hope that i can see my way through it if it happens again. For me, this happened when i was really struggling to get people to see and understand my ideas. Now that i have been diagnosed with the ASD i have a much better understanding of what was going wrong. I've seen a few references to TOM and guess that i am getting this eventually (i'm 56 so i must be a bit slow on that one). I'll try and find the time to read ip some more on this.

    :-)

Reply
  • Former Member
    Former Member

    A really warm welcome. I read a few of your other posts and then came across this one this morning. I hope you will find us friendly on this site, sometimes we write first and think later but that's what happens with the ASD sometime! There's a mixture of people with different degrees of difficulties and in different states of mind so it might seem a bit strange at times. I hope you will find the advice useful and i think other people will find your advice helpful. You seem to really understand lots of the theory :-)

    You write really well and I was surprised to see your references to your ID. Sometimes our abilities get hidden because of the communication difficulties and sometimes writing things down can help your real thoughts to get out and be understood.

    i'm sorry to see that you get depressed. This is very common in the people on the forum. I've been through a few episodes and know how hopeless things can seem sometimes. i've also come through it ok and hope that i can see my way through it if it happens again. For me, this happened when i was really struggling to get people to see and understand my ideas. Now that i have been diagnosed with the ASD i have a much better understanding of what was going wrong. I've seen a few references to TOM and guess that i am getting this eventually (i'm 56 so i must be a bit slow on that one). I'll try and find the time to read ip some more on this.

    :-)

Children
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