Finding the new me, one step at a time.

Hi all, I would just like to introduce myself.

I am not usually a forum person, having had one too many bad experiences with other forums in the past, however, I have been re-assured that this is a safe place. So here goes. 

My name is Steven and I am from Greater Manchester. I am 43 years old and received my official diagnoses in January. I was also diagnosed with ADHD last year. My story is a long one with many twists and turns, but I am now in a position where I finally know roughly who I am, and why I have never been able to fit in to societal norms. For as long as I can remember, I have struggled with the problems I now have come to find out are connected to my diagnoses, however, I have always been in the mindset that I will never truly get answers or understand why I am different. Why I have to fake who I am in order to fit in to what is expected of me, or destroy my liver in order to socialise. I was led to believe that, due to the way my traumas have impacted my life, I had to live with the diagnoses I had received, and live the turbulent life I did. It took 2 major breakdowns in order to finally get on a pathway for true diagnoses. 

For many years I had been diagnosed with Cyclothymia, chronic Depression & Anxiety, and Seasonal Affective Disorder. The answers for this was medication and being frequently kicked off CBT waiting lists for most of my younger adult life. When I finally talked about my childhood traumas, ADHD was added to my list of conditions, and after years on waiting lists I was upgraded to EUPD (BPD) and placed on a treatment pathway. It was the facilitators of the treatment pathway who picked up on many of my neurodiverse traits, and prompted for me to seek a diagnoses. I could write an essay about that, but long and short, they completed pre-assessments for me and then I used "right to refer" for seeking diagnose. 

When the idea of Autism was first raised to me, I argued that Autism was demonstrated through learning difficulties or savants like "Rain Man". I was calmly advised to do some research and let them know next time if I want a pre-assessment. It threw me how much fit with me and I was discovering answers to the questions I never thought I would be able to ask. I was ticking boxes I never knew were different, and I was finally starting to understand who I was. The pre-assessment was carried out over two very long sessions which resulted in me hitting either 44 or 46 (I can't remember off hand) on the AQ50 as well as 12 out of 12 on the ASRS. This was a life changer for me, however, I still didn't believe this was the answer to my many quirks and differences. Imposter syndrome kicked in and I expected to go into the assessments and be told that I was wasting their time. Due to this, I would look at what was different in me compared to diagnostic factors and try to prove they were wrong. Anyway, 14 months later I was officially diagnosed during one of the most distressing yet calming assessments I have ever had to undertake, offered information on where to go for more information or help, and sent on my way to tackle the world with this new information.

Six months later and I am finally in a position where I have not only accepted my diagnoses, I am slowly embracing them by working my way to what is a new norm for me. I have received some amazing help and guidance through my local mental health trusts offerings and I am ready to take the next steps of venturing out into what is a whole new world for me. I have joined this Forum for some advice and tips as well as being able to share some of my knowledge if I am able to do so. Most of the time I will be lurking in the background reading, however I will try to comment as and when I can or feel it is acceptable to do so. I am hoping to find a circle in which I am comfortable and safe in, as oppose to the circles I have previously overcompensated for in order to try to fit in and be accepted. 

Thank you if you have gotten through my ramblings. 

Stevie B.

  • I lived up the Raymond Babbit Stereotype, seventeen years ago. But, ultimately, I realised that it was another act.

    Also, I should've been a Fireman. All I did, my whole Adult life, was fight fires. But I'm stronger, as a result.

  • Having permission to be kind to myself has helpe

    Me too.

  • Hello, I was diagnosed a week ago, at 56. Took 4 depressive episodes, a pile of strange behaviours even I could not overlook and a bucketful of confusion to finally seek help.

    I could not believe it. I tried to disprove it, but just found more evidence.

    I was still sure they would say I was not and I was wasting their time, but ultimately 3 psychologists have said the same thing, so I have to believe them. When I went to get the final diagnosis I thought it would be no, but they said they thought I was before we even started the formal assessment, so I needn't have worried so much.

    Was suggested 27 years ago I might be, but I refused to engage, although I came close. A missed opportunity that would have changed my life.

    I have been replaying my life viewed with new information. Most I don't care about that much, I can live with it, it is only the past  relationship stuff and trauma that has floored me. 

    I understand why I have some emotional issues, but not what to do about it.

    At least now I understand the role alcohol has played.

    Having permission to be kind to myself has helped.

  • Hi,

    Welcome to the online community! Thank you for sharing your experience of diagnosis with the community. I am glad to hear that you have had good advice and guidance already. If you ever feel you need some extra advice, the NAS have Advice and guidance on a range of topics. 

    Best wishes,

    Olivia Mod

  • Hi and welcome to the community

  • Hi and welcome, I was diagnosed two weeks ago with autism. I am 57, I completely understand the trying to drown one’s liver. I could never understand why I couldn’t socialise. Decided 15 months ago that alcohol and I had to part ways. I feel much more content finally knowing why I’m different. I hope you enjoy being here.

  • Hi

    Snap same here took a advocate to say give.me what they've diagnosed you with is any one in your family have autism yes you need to ask for a assessment I went private my adha assesment is on the 14 th July because the mental health team said I displayed obvs signs of it. 

    I feel relief that I am not a complete freak. But getting the ot for sensory issues a issues I have to officially complain to icb not to ombudsman at Westminster due to lack of provision and Dobby our local MP Mr John Healey wouldn't help or his office staff.not much use got fobbed off.

    Stef