Hello & questions

Hi,

I'm a 58-year-old man, and only recently have I begun to wonder whether I might have lived my life with undiagnosed autistic (or neurodivergent) traits. 

I’d appreciate perspectives — especially from others who came to these questions later in life.

A bit of background:

  • I grew up in a household dominated by a highly controlling father. My childhood was spent adapting myself to please or reflect him. My mother died when I was 18; my sister passed away a few years later. I was diagnosed with cancer, myself, at 19 - but, was given the all clear. Loss and emotional suppression were part of the fabric of my formative years.
  • As a child I felt like a spectator rather than part of things - something that has stayed with me and increased over the years.
  • I’m very sensitive to sound.
  • I constantly fidget with specific items I keep to hand for the purpose.
  • I get obsessed with specific things eg. Learning an instrument, writing - and pour massive amounts of (solitary) time into doing them. 
  • I often felt relationships and their demise deeply. Sometimes, in my teens, resorting to self-harm to make myself feel better. But, this was never done with a serious intent to injure myself permanently - more a “signal”?
  • Socially, I’ve always struggled. As a child I loathed being forced to socialise in groups. I can be charming, funny and socially fluent. But, it’s a performance that exhausts me. Alcohol became a customary way for me to numb the anxiety at parties and dinners. Over the last eight years most of my friendship group have fallen away. I might quarrel with a friend then avoid them. This would lead to me not going to “events” because the anxiety was overwhelming that they would be there and I would experience hostility. Eventually, people stopped asking. It’s a relief to no longer go to gatherings.
  • With many of the people I called friends, I started to question why they were in my life. I basically reflected their behaviour back to them i.e. they got what they wanted from me - but I realised it was a one way street. I began to consciously stop doing that a while go and many people have gone with it.
  • Other than friends, I generally find social interactions hard. They leave me feeling “good” I that I have been with people. But, often exhausted from having to interact.  I prefer one-on-one conversations and find small talk meaningless/difficult.
  • I find it hard to empathise with people. I know how to “perform” empathy. And I know when it needs to happen and that it’s a general good. But, I don’t really feel it much.
  • I had some form of nervous breakdown 8 years ago. Largely unnoticed by those around me. I had therapy for several years which helped but no conclusions were reached.
  • I am highly educated and functioning from that point of view. I’ve been a free-lancer in for 35 years. No one (including my partner and 2 children) would say that there’s anything visibly wrong with me. But, my increasing isolation, depression and social phobia would suggest otherwise. Also, over the years, I have had suicidal thoughts. Happily, though, those have abated.
  • I feel I’ve spent much of my life maintaining an expectation other people have of me, which goes way back to childhood. Only in quite and rare moments do I seem to recognise myself and be at peace. This had led to a lifetime of feeling that I’m malfunctioning in some way and I should be able to “solve” myself. But, that’s never happened.

Does any of this resonate with others here? Would it be worth exploring further, possibly through formal assessment?

Thanks for reading.

Parents
  • Hello. You are a similar age to me.

    Life has felt like a big endurance test.

    I reached a crunch point in January and could no longer put off seeing someone. I kept telling myself I was alright and burying stuff, it wasn't that bad, etc. but I was very confused about things.

    I tried a counsellor, available for free through work, but it was clear to me I needed something more.

    I screwed up the courage and contacted a clinical psychologist privately, after a few false starts which almost dissuaded me.

    I did not think I am autistic I thought I was depressed for some reason, but they thought I likely was. I did the AQ-50, main screening test, a score above 32 is clinically significant.

    I was in denial for a week or 2, did some research to try to disprove it, but then started to come round to the idea. I did loads more tests, all the ones on embrace autism site, which all were too high to ignore (masking one was interesting and hard to answer), then decided I had to know for sure as it prompted me to re-evaluate a lot of my life, in a negative way.

    So I paid to get tested. Will know the answer in 2 weeks.

    Either way is problematic but at least I will have a better idea about myself. It was suggested to me 28 years ago and I rejected it. If I'd done something then it may have saved me some trouble.

  • Thanks for your response. If I take it further, it would be mostly for my benefit - i.e. to take the pressure off myself.

    As you say, "confusing". And one hopes the feeling of things not being right will go away. But, it doesn't. I'm not looking for it to be the case. But, it's amazing how much things have changed in the last 20 years. And people have started to recognise we're not all wired the same way.

  • One of the main points for me is to understand if the depression is coming from overload/burnout from ASD or something else.

    This makes a difference to how I approach the future.

    It also makes a big difference to my past and whether I made some huge mistakes which very negatively impacted me. This whole topic has caused me some significant pain.

Reply
  • One of the main points for me is to understand if the depression is coming from overload/burnout from ASD or something else.

    This makes a difference to how I approach the future.

    It also makes a big difference to my past and whether I made some huge mistakes which very negatively impacted me. This whole topic has caused me some significant pain.

Children
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