Hello from Mr Confused

I'm going to try this out, I don't normally post online - hello! My daughter was diagnosed as autistic last year, so naturally I wanted to research all I could to learn how to support her. The problem I found though was that the more I read/learned about it, the more I started to relate to everything myself - spotting traits and things I have or currently do, experiences in my life that could be explained by autism, and so on. I've now felt very confused about who I think I am for months.

I'm in my 40's and spent a lot of my recent years using therapy to improve my mental health, trying to be positive minded and push through certain things I need to feel happy but find really uncomfortable (basically socialising). I just thought I was introverted, shy and socially anxious and settled on that, but these new ideas have me questioning my whole identity - was it always something else? And if it was, have I been wasting my life so far trying to be "normal" like everyone else only to discover that it was never going to happen?

I could get a more formal diagnosis I suppose, but it is time consuming and potentially expensive. I'm also a little apprehensive of the outcome - I could get an answer I don't want to hear, yet I also don't like the idea of never knowing (paradoxical, I know). Has anyone ever just decided that they are autistic and settled for that? I'd be interested to know.

Parents
  • Hi,

    My autism revelation is very recent (end of November 2023). I'm 53 years old. I can relate. I made this discovery after my granddaughter was experiencing difficulties. I have gone down the NHS route. An ASD assessment referral was submitted, and it's been accepted. There is a two year wait for the assessment in my area.

    Personally the fact that they have accepted the referral, may be all the recognition I need. I have 2 years to decide whether or not to go for the official diagnosis. I believe I am truly autistic. It all makes so much sense.

    Post revelation - for a while I questioned who I was. But I've discovered I'm still me. I just understand myself better. I'm more aware of my behaviours and needs. And I'm kinder to myself. So although it was a bit of a shock initially, I'm finding it quite freeing. 

    I hope my story is of help. 

Reply
  • Hi,

    My autism revelation is very recent (end of November 2023). I'm 53 years old. I can relate. I made this discovery after my granddaughter was experiencing difficulties. I have gone down the NHS route. An ASD assessment referral was submitted, and it's been accepted. There is a two year wait for the assessment in my area.

    Personally the fact that they have accepted the referral, may be all the recognition I need. I have 2 years to decide whether or not to go for the official diagnosis. I believe I am truly autistic. It all makes so much sense.

    Post revelation - for a while I questioned who I was. But I've discovered I'm still me. I just understand myself better. I'm more aware of my behaviours and needs. And I'm kinder to myself. So although it was a bit of a shock initially, I'm finding it quite freeing. 

    I hope my story is of help. 

Children
  • I'm also on the NHS pathway. A few months after being put on the waiting list I had a letter to say I had passed the first stage. Thus, and the fact that my GP was happy to put me on the list was all I really need for now. I know i am autistic.