Hello Everyone

Hi

I'm 44 and just diagnosed last month. Came out of the blue for me so still wrapping my head around it all! I really want to find some local people in a similar situation as I'm thinking it'll help. I just don't know where to start!

I've been going over and over my whole life, looking at it from a new angle and it's a lot to deal with. I've only told a handful of people and not even my parents yet. No idea where to start with that one.

I don't have a regular psychologist as such. The whole report was very 'textbook' - it seemed to forget that there was a human being involved (i.e. me). I think I'm getting over it. Sharing my assessment experience on Autastic.com made me feel a lot better - there were some beautiful, compassionate responses.

I was relieved when I got my diagnosis but must admit I've found myself somewhat conflicted trying to understand myself since. Is this your regular psychologist, and do they specialise in autism? If not, it might be worth finding one who is.

Hello everyone. I'm 41 and I received my autism report three days ago. I was extremely disappointed by it - it made me feel like a defective person. My psychologist wrote that I kept bringing the conversation back to myself, which I'm utterly baffled by - the appointment was about *me* and *my* brain. Anyway, I have had some lovely, encouraging messages from friends and fellow autists in response to me sharing my disappointment about the report. I hope this is a helpful post.

I was working with a counsellor who kept finding that her strategies for my anxiety weren't working. She suggested I might be autistic and recommended a counsellor who was more experienced with neurodivergence. I think both of those things really helped me- have you found your diagnosis productive for your mental health?

Have you figured out anything worth sharing?

Similar to this, 43, ASD didn't catch me back then and i was just a nerdy kid trying to figure out the rules. still am tbh.

I'm unsure about that so far. Before autism came on my radar in 2019 I was focussed on my long term depth Gestalt psychotherapy.that I'd been in since November 2007. I was viewing it all as I would gradually 'get better' regarding my chronic mental ill health (diagnosis Dysthymia in 2010). Getting the autism diagnosis has altered+affected my view of it all i.e. I always was autistic and always will be. I do remember my Gestalt psychotherapist saying right near the beginning that we were working on me learning to manage what I've got rather than 'be cured' I think but I kind of ignored that and hoped/aimed for more of a  'cured' type outcome (and 'everything' would be going great i.e. a very idealistic type vision fantasy). This has now changed for me, a realization (probably maybe getting closer to reality than being more in fantasy illusion world) I suppose and has threw me (my world view etc) a lot. I decided to stop my psychotherapy in November 2022 for various reasons including that my view of eveything had changed gradually since my autism diagnosis in November 2021 (November keeps cropping up in all this and we're in November 2023 now too!). I'm ttherefore exploring autism slowly now e.g. became a paid up member of NAS this year+joining this forum chat service, trying some local autism groups and so on. I'm extremely unclear where I'm going with it all now (even more than I have been in the past). I might continue psychotherapy in the future in another location i.e. I'd like to 'move on' generally somehow somewhere 

That's interesting, sounds like you have a GP who's quite well informed in terms of m/h issues. Do you think you've made progress with your general mental wellbeing as a result of your diagnosis?

It is, yes. I wasn't sure how to spell it, but I've heard a lot of good things about it. Is it nearby for you?

Funnily enough, I had a couple of similar experiences.

In 2004 I was working as s teaching assistant when our new intake included 3 kids with ASD/aspergers diagnoses. I tried to find out a bit about it because I really didn't know anything but the internet was obviously very different because I had a bit of difficulty but I do remember reading one description that made me think 'that's a bit like me'. But then I thought 'don't be one of those "I'm a bit OCD" people, you don't know what you're talking about'. 20 years later it turns out I was right.

Like you, my wife had been saying she thought there was something different but wasn't sure what it was. I'm not great at noticing my moods or behaviour patterns so it's really useful to have her reading the assessment questions and saying 'that's exactly what you're like' or 'you do that all the time'.

Is there anything you've read that you would particularly recommend in terms of unserstanding yourself better?

Is that the Machynlleth Comedy Festival? I didn't know about that one until now, thanks

I also went around 25 years ago, with my parents and my brother, we saw Bill Bailey and had to leave early because he finished after the car parks all shut. I don't travel much these days because of caring respovsibilities but I think if I did go to a festival I'd be tempted by Mach Fest. There's quite a good comedy club where I live which I go to once in a while. This time last year I saw Robin Ince and Laura Lexx.

I have had constant issues throughout my life with feeling overwhelmed in very social settings, schools, workplaces, episodes of burnout and depression. In my 30s it was suggested I was bipolar II but that never rang very true (nor did it ring true to my wife who works in mental health). My wife had been suggesting I take some online autism assessments for a few years but I'd always dismissed it because I didn't think that what I knew about autism fitted me particularly well. It turns out, I didn't know an awful lot about autism!

All of the tests suggested a strong likelihood of ASD so I thought I should investigate further. My mum developed Alzheimer's in later life and I thought if I do have autism it really should be on my medical records as it may impact my future care. I took my test results to the GP who referred me to the autism assessment people. I've been through the screening process and placed on the waiting list for assessment. 

I've since read extensively about autism and the more I understand, the more it fits my own experience. 

My GP prompted me to in summer 2019. Autism hadn't been on my radar hardly at all until then, I'd been focusing on mental ill health awareness and treatment particularly since around 2007. This year I've started to explore Autism more e.g. joining NAS and this forum community chat.

No, I didn't get organised and it was too long a distance from me too at the moment youtu.be/diXTLc46X90 I'm attracted to Edinburgh Fringe Festival but haven't got to that either, have you? I did impulsively go once around 25 years ago but it turned out I'd got there a week too early (so I just hung around and visited the place instead) 

Thanks GPK26. What have you learned so far do you think?

thanks. Do you mind if I ask what prompted you to get assessed? Please don't answer if you'd rather not. It was suggested to me by a therapist.

Thanks Max. You're about 10 months ahead of me. Are you learning/understanding new stuff about yourself post diagnosis?

HI Effenel, thanks for replying. I take it your fur baby is a dog? We currently have two rabbits and two hamsters but we (my wife and I) have always had animals and they've always been important to us both.

I'm sorry to hear you've had a poor response to your diagnosis, that must be hard. I'm off to a big family event for the first time since my diagnosis and I'm nervous to find out a) whether any of them know/have taken the news on board and b) how they will react.