Published on 12, July, 2020
Just wanted to say hello. I have ehlers danlos and am nearly thirty. I also have epilepsy and have thought for a while that I am on the autism spectrum. Please if anyone else with these conditions, especially other females, could let me know how things went with diagnosis in late twenties etc. I'd be very grateful. Thanks in advance. Have a nice day
Hi NAS88799 Welcome to the forum
I am a female with autism AND Elhers Danlos Sydrome (among lots of other issues!). I was diagnosed with EDS about 5 years ago when I was 30. I saw an EDS specialist in London who carried out my diagnosis, I will be happy to provide his name if you wanted to self refer to this practice? He was very nice indeed.
Reminder of Rule 5:
Be nice to one another and enjoy chatting with others. We encourage conversation and respectful debate; please be aware that individuals may give opinions which are not shared by other members. Insulting posts or comments making personal jibes will not be tolerated.
Bimmer Lady said:umping on supposed safe spaces to goad/troll = is my forte!
wait whats this?sorry on the uptake here but did you just admit that you jump on safe spaces to troll? that its your forte?ok..
Funny: u keep coming for me showing urself for the actual person you are (ASD?)...im built for this my friend. men with ***, jumping on supposed safe spaces to goad/troll = is my forte!
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ah ND...so you do have narcisistic disorder???
then in that case i believe you are in the wrong here and are rude and aggressive and also narcisistic as you seem to think my comment on this thread was about you when i wasnt talking to you in this thread. i suggest you get that seen to but most people with npd wont get it seen to as they think its a insult. but you displayed it here when you imagined my words were addressed to you in this thread. not everything is about you ya know? lolmay i also remind you of rule 4, be nice....which you have broken....
no this thread, that you've jumped on with flippant comments. u look a fool! but as you were...keep going!
this is my next buy - i have quite a few books like these, as EDS often overlaps with ND. fab post!!!
eh? im confused....have you got the wrong thread? loli havent contacted you on this specific thread or mentioned you at all so im gonna give you the benefit of the doubt here and assume you have got the wrong thread and you mean that other thread were i ranted on? lol
you have clearly come on this thread, which sat unanswered for 7 days prior, to belittle/attack me - with this lady as a casualty in your pathetic, small minded, trolling. Your statement, as if you are an authority on medical conditions, from your quick google search, is EXTREMELY damaging and triggering for those of us living with this condition. it also demonstrates your level of comprehension (zero) and capacity to learn/educate yourself. there is a special place, for special people behaving like u - its toasty warm! do one!
Hi, one of the first books I read after autism finally rode into town and identified itself was this one. Laura was late diagnosed and had been in poor physical health for much of her life, after many operations Elhers Danlos was finally diagnosed. unfortunately as a young woman, she spent quite a lot of time in a mental health facility, she did though meet her future husband there. It’s a good book about late diagnosis of autism and EDS.
never heard of that before, reading it it sounds a bit like brittle bone syndrome but yet more advanced and effecting the skin too.
Hey, I sent you a message!