Unsatisfactory recent NHS assessment leaving me with more questions than answers

I am an adult female, 48, who has just had a remote assessment funded by the NHS but carried out by a private company I think to reduce the waiting list times.  I felt really lucky to be seen more quickly than waiting for a face to face assessment but the experience hasn't been satisfactory and has left me feeling low and confused. I prepared thoroughly for the assessment and have read a lot of books about autism.  I feel convinced that I have autism after reading about the experiences of other adult females but I know it can be really tricky to get diagnosed unless the clinician has the right knowledge and experience dealing with adult females.  My assessment was in 2 parts with a different clinician for each part.  The first doctor said that she thought I was autistic and would write a report to say so.  The doctor for the second part was a consultant psychiatrist who said that he wasn't convinced and that anxiety was the issue although I had autistic traits.  HIs recommendation was to try different medication and a higher dose, although I've tried that before and it doesn't change anything.  As he's the consultant he isn't going to take the first doctor's opinion into account and said that she was asking me leading questions!  This leaves me in limbo!  I have read that you are either autistic or not on a spectrum and that you can't have autistic traits unless you are autistic.  Also, I don't want to be fobbed off by being called simply anxious, which is what people have told me my whole life, but I want to understand more the reasons for the anxiety, things I have worked hard over the last year with my therapist to find out and have really helped me.  Sorry to rant but I'm so angry and would love to know if anyone else has had a similar experience and if they have any advice for me.  Also, should I consider a second opinion but I guess I would have to pay privately for this.  Many thanks.

  • i was referred by my go to keep my wife happy and prove her wrong . After 4 separate assessments etc and them chatting to my wife and the gp  referral I was told I do have autism .  But was asked initially and told people try to get it to get benefits I said I work and was trying to keep my wife happy. It soon came apparent that I had something . Thing is you may or may not have autism but you may have something . They all agreed that I had autism and said I did and do things that I did not know that give it away. I really hope you get the help you need

  • Yes I think parents often do not realise that some of the traits that their child display are autistic. Especially as parents might also be autistic but undiagnosed and therefore have no idea that some traits are autistic as they experience them too so it doesn't seem unusual to them. At least that's what it was like for my Mum and I- now that I am being diagnosed, we strongly suspect that she is autistic too. Now that we are learning more about autism we are seeing more and more traits that we previously though were perfectly 'normal'. 

  • When I got my psychologist I wrote pages of things. I didn’t list any symptoms, I merely listed situations that I found myself in, and examples of circumstances that I found very difficult. After which, I listed other struggles I have with communication, routines, and sensory stuff.

  • when i asked my gp about my suspicions after having read on the internet and realised it almost fits me, he asked if i want to be autistic lol as if it was a desire to just be diagnosed as that rather than get help, even though i primarily asked for help with getting on in life, just got snubbed and he asked if im only bringing it up because i just want the diagnosis. so called referred me but i never got a assessment so i guess they snubbed me.

    its all good as they cant help anyway, they are useless, the only one that can help you is yourself, nothing can be found outside yourself... or something lol

    funny thing is the gp was probably right, i probably dont have autism, i probably have something else instead like one on the schizo spectrum instead lol they are all alike anyway, its safer for them to just check them out rather than snub people off though.

    i guess its their job to be suspicious though, but they let their doubt of people get in the way of doing their jobs at times. although my gp i have are pretty brutal in their doubt, i went to them with black swolen itchy fingers that had specs of red on them like my fingers were bursting and they still snubbed me off on that and said it was nothing and asked me what i expect them to do about it... very shockingly bad health services we have in this country.

  • i read that researching and preparing and rhyming things and terms off will make them suspect you have munchausens syndrome instead.

  • I think you alluded to tallness in another post elsewhere.  I understand your analogy but there is only one requirement to be classed as tall and that's to be over a specific height. Autism is much more complex than one thing. I prefer the cake analogy.

  • I did have a similar experience.  I was first assessed aged twenty-two or twenty-three and found to have many autistic symptoms, but not to be on the spectrum.  Fast-forward over a decade, and I was in a job that was clearly not a good environment for me, but I struggled to work out why.  Then I transferred to a worse one.  Gradually, I realised I was on the spectrum and these were autism-unfriendly environments.  I was able to get my GP to refer me for a second assessment and I did eventually get diagnosed.

    In order to get diagnosed, I did a lot of reading and autism and compiled a big document (about five or six pages) listing all the symptoms I had and I showed this to the psychiatrist at the second assessment.  I was fortunate to have a supportive GP too.

    Did you have someone who gave evidence about your childhood?  This was the issue with my first assessment.  There were things about me that my Mum didn't know where evidence of autism and as the psychiatrist didn't ask her a direct question about them, she never mentioned them, so I made sure to put those t hings in my document.

  • I know, there is many traits we have in common

    but what is the true distinction between both is omitted everywhere - the way of thinking

    I forgot to add monotropism is one of reasons for developing thinking that way

    I would speculate that traits develop after we are born, we do not have predisposition for them  from the moment of conception

  • If you look at any autism-related tests where the scores are graphically represented there is always a substantial region of overlap between the autistic and allistic 'areas under the curve'. This shows that the two populations are not distinct and separate, but there is a gradation between them. For any trait there will be allistic people whose score is more typical of autistic people and vice-versa. It is the overall sum of traits that is important. It follows that there must exist people with intermediate natures, with intermediate brain types.

  • I guess if you meet the criteria (all three types) and they affect your day to day life significantly, AND you have evidence of this from childhood, there’s a pretty good chance you are autistic. 
    Anxiousness is part of it for many, but I think it’s why you get that way. What triggers it.

    Medication doesn’t help anyone with Autism, so I have no clue what he’s about to try next? 
    My daughter was told she had anxiety not ASD, which wasn’t correct. A second opinion is a good thing to try if you are able. Be sure to find someone who specialises in autism and especially females.

  • I would say there is a point in ''tallness'' when the way of thinking changes. So, autistic and allistic develop different Theories of the Mind

    But so called respected medical professionals can't see inside your head unless you have brain MRI

  • I have read that you are either autistic or not on a spectrum and that you can't have autistic traits unless you are autistic. 

    That is not really true. You can have autistic traits and be sub-clinical. Autism is like tallness, and it is down to the clinical assessors to decide where the cut off point is between tall and not tall, or autistic and not quite autistic enough. Personally, I would go through the DSM V autism diagnostic criteria and for each criterion list all the traits that you have that show that you fit, with as many examples from your present and past as you can come up with. I would then submit this document to whoever the diagnostic clinician reports to, for reassessment.