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About to lose my mind!

joey-babes

Hi, my name is Jo and my five and a half year old boy was diagnosed ASD just before his 3rd birthday.

He was also born with Hypo-plastic Left Heart Syndrome and had his third stage of surgery last year.

Pysically he is in great shape, his height has shot up and he is maintaining a good weight.  He has several medications but none of which should have any effect on him other than blood related.

But this past year I have been noticing a definate down turn in his behaviour at home, mostly related to getting dressed in the morning and getting on the school bus.  Also where as before if he was angry or annoyed he would just lay on the floor and shout now he will try to knock chairs over or break whatever object is close at hand.

It is as if his 'symptoms' are getting worse.  Fighting to get his uniform on and get him on the bus every morning is putting a real strain on my family.

I just dont know what to do, he's been in this class and using this bus for over a year now.  Every now and then we will have a morning where he is fine, but I cant find any link between them.

Really I'm just looking for sugetions from others who have experienced similar and what they did to fix it so we ccan try it.

Thanks

  • There is a chaperone on his bus who sits next to him, but whenever we try to question her or the driver about his behaviour once he is on the bus all we get is 'he's fine'. The chaperone is polite if a bit shy and doesn't speak if avoidable, the driver is a bit aggressive almost and we have actually complained about him in the past.  We are hoping maybe we can pursade the school to put him back on his old bus but thats a council thing aparently.

    Its just so frustating coz every now and then we have a morning where he walks out and onto the bus with no problems and others where we have to wrestle and i don't know what makes the difference.

    If he is tired he is nearly always difficult but then he can be just as difficult without the usual signs of being tired.

    Sorry this is rather turing into a theropy session for me i think!

  • hi again.  It wd be interesting to know what these "issues" are as it wd help you to make sense of your son's behaviour.  I wd try + pursue it further with the Head. If the Head sorts things out with the bus co., then you need to know what they've agreed to prepare your son.  I really don't know what you can do to get him on the bus peacefully at present.   He is obviously reacting to things to do with the bus journey : the bus itself, the driver, other children.  Do they have an Escort on his bus?  Perhaps s/he cd enlighten you, if willing.  

  • Evan attends a special needs school and is in a small class of 5 in a room taloired to autism.  I have apoken to his teacher several times and he seems to be very happy at school.  Since I first wrote on here I have discovered that the head teacher is having a meeting with the bus company to 'discuss ours and other issues'.  So I'm thinking maybe its not just me having problems.  The thing is sometimes he will walk on fine, sometimes we have to use a lollypop or biscuits and sometiomes (lately most times) we have to wrestle him on and in to his seat.  I HATE doing this! It feels wrong, but he needs to go to school and I am unable to take him in myself.

    Any suggestions for methods of getting him to get on the bus without it being a wrestling match or bribery?

    Thanks

  • hi - good news that your son is physically well after his ops, which must have been difficult for all of you.   Maybe he's using his new-found physical strength to get his point across?  He seems from what you say to be either reacting to going on the bus and/or going to school.  Things can change in a class so I wonder what his teacher's saying - how is he when at school?  I've found that if my son gets upset it is often due to environmental factors such as the physical environment not being autism-friendly or a person he has to associate with not being autism-friendly.  Has he got adequate support at the school?  Also has he got a sen statement?  Sorry for all the ??s.   If I was you I'd check the school situation out.  bw + hope things improve soon.