About to lose my mind!

Hi, my name is Jo and my five and a half year old boy was diagnosed ASD just before his 3rd birthday.

He was also born with Hypo-plastic Left Heart Syndrome and had his third stage of surgery last year.

Pysically he is in great shape, his height has shot up and he is maintaining a good weight.  He has several medications but none of which should have any effect on him other than blood related.

But this past year I have been noticing a definate down turn in his behaviour at home, mostly related to getting dressed in the morning and getting on the school bus.  Also where as before if he was angry or annoyed he would just lay on the floor and shout now he will try to knock chairs over or break whatever object is close at hand.

It is as if his 'symptoms' are getting worse.  Fighting to get his uniform on and get him on the bus every morning is putting a real strain on my family.

I just dont know what to do, he's been in this class and using this bus for over a year now.  Every now and then we will have a morning where he is fine, but I cant find any link between them.

Really I'm just looking for sugetions from others who have experienced similar and what they did to fix it so we ccan try it.

Thanks

Parents
  • hi - good news that your son is physically well after his ops, which must have been difficult for all of you.   Maybe he's using his new-found physical strength to get his point across?  He seems from what you say to be either reacting to going on the bus and/or going to school.  Things can change in a class so I wonder what his teacher's saying - how is he when at school?  I've found that if my son gets upset it is often due to environmental factors such as the physical environment not being autism-friendly or a person he has to associate with not being autism-friendly.  Has he got adequate support at the school?  Also has he got a sen statement?  Sorry for all the ??s.   If I was you I'd check the school situation out.  bw + hope things improve soon.

Reply
  • hi - good news that your son is physically well after his ops, which must have been difficult for all of you.   Maybe he's using his new-found physical strength to get his point across?  He seems from what you say to be either reacting to going on the bus and/or going to school.  Things can change in a class so I wonder what his teacher's saying - how is he when at school?  I've found that if my son gets upset it is often due to environmental factors such as the physical environment not being autism-friendly or a person he has to associate with not being autism-friendly.  Has he got adequate support at the school?  Also has he got a sen statement?  Sorry for all the ??s.   If I was you I'd check the school situation out.  bw + hope things improve soon.

Children
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