Waiting for diagnosis

Hello.

My name is Alberto, I've just turned 40, and by suggestion of my psychologist and after reading some books about AS and Asperger's I'm starting the journey to get a diagnosis. 

I moved to the UK a couple of years ago for work reasons. I'm currently living in Cambridgeshire.

Being somewhat new to the UK and very probably being on the spectrum, making friendships is very hard for me. I sadly can say that I have no friends at the moment here and my family lives in a different country. So, yeah, it can get lonely sometimes.

These past couple of years have had their difficulties, but I'm happy-ish at were my life is heading.

Well, that's it for now... 

Hope to get to know some people around here.

  • I love Moonlight Sonata - it's a good one for drifting off to sleep to as well! Oh, great - good luck with your Grade 4 Slight smile I find classical music very relaxing. Boogie woogie sounds fun Slight smile

  • Thanks! Yes, I think that's one of the activities that will be with me as long as I'm able to play

  • keep going - it improves your brain and coordination 

  • I started playing when I was about 10... Never did any grades back then.

    I used to play mostly classical, Mozart sonatas, Beethoven sonatas (Pathetique and Moonlight, all 3 movements of each), Chopin waltzes, some Bach, Kodaly, Schumann, and others.

    After university I kept playing on and off until I restarted taking classes last year! Since I've been interested in having some grade exams. I'm starting with Grade 4, I have my exam date in November and have already been preparing that.

    As, what I enjoy, well after playing classical most of my life, I've started learning to play boogie woogie piano, which I enjoy a lot... 

  • Great - hope it helps Slight smile

    I was pretty young when I started playing (maybe 5/6 when my mum started showing me the basics). I managed to get my Grade IV and then played to Grade V standard in my late teens, but I gave up after that. I revisited it in my late teens/early twenties, and now I just play when I can (I wish I had more time to do it).

    I love playing Einaudi - I find his music very relaxing and the repetitive nature makes it a little easier to learn. Aside from that, whatever I can manage to get my head around. I actually want to start teaching myself again and taking it more seriously once I've finished my Masters. 

    What do you enjoy playing?

  • That's actually great advise... I'll try it on my next class...

    Have you been playing the piano for long? What do you usually play?

  • Geeky stuff is great. I play piano too Slight smile

    I find it really difficult approaching people in groups, especially when they all know each other already. I tend to try and look for someone who also looks new/isolated (a safer starting point, as they'll probably welcome the company from a fellow newbie!), or seek out the smallest group possible (e.g. two/three people standing together) and ask them a question to get the conversation started. It could be any question - like asking them how long they've been coming to the group, or when the next event is. Just something to help you get started Slight smile

  • My interests?? Well, I tendo to gravitate towards geeky stuff... Love movies (especially sci-fi/fantasy), anime, Lego's, reading fiction, playing the piano, listening to music, playing tennis... 

    I've joined a couple of groups, now I just have to get the courage to actually speak to someone... hehe

  • I've went to the NHS, but the waiting lists for adults are about 2 years long! May I ask to what clinic you went for a private diagnosis? I'm inclined to go the private way...

  • Hello and welcome Slight smile I'm in my mid-twenties, awaiting diagnosis. It's seems like a very long wait, but hopefully it'll be worthwhile.

    What are your interests? Maybe there's a group/club you could join to meet similar people.

  • I somehow doubt your psychologist forgot to tell you about the clinics at the following link, but let's see:

    https://www.autismresearchcentre.com/clinics

    www.cpft.nhs.uk/.../class-clinic.htm

    docs.autismresearchcentre.com/CLASS_leaflet_Sept2013.pdf

    www.youtube.com/watch

    I should just say that the linked clinic works in collaboration with ARC (as of the top link). My understanding is that it is a diagnostic clinic for adults, as long as they are resident & eligible for the Cambridge & Peterborough NHS Trust. But I daresay that the collaboration could be quite a productive one, for both yourself and the clinic. But I'll let you figure it out whether you are eligible. (I'm a UK citizen, but have been so long abroad I am no longer eligible for the NHS. This is one of the places I investigated before I eventually went for a private diagnosis at ..... a well-known NHS contracting clinic. :-)

  • Hi! Well, I've joined a tennis group which starts today actually! Let's see how that goes, and I take a piano lesson every 2 weeks. Not a group, but at least I get contact with another human being and that gets me out of my comfort zone, which is good.

  • Hi, well, I've ready already a couple of books on autism and Asperges´s, and those pretty much explained my whole life... 

  • Thanks! I've taken heed of your suggestion and joined the Meetup group for autism in Cambridge. I'm planning on going to next month's meeting. 

    And yes, I'm loving living here. I work in Cambridge and live in Ely. 

    I've read now a couple of books about autism and Asperger. They really spoke to me, pretty much described my whole life so far.

    Even though I haven't been officially diagnosed, I'm pretty sure I am on the spectrum, and actually I'm quite OK with it. Now only waiting to get an assessment. 

  • Thanks! Hope you are doing OK

  • Hi,

    I'm 40 & in the UK.

    I don't really have many friends and have lived here all my life. Diagnosed this year.

    I go to a craft group once a week and although the people there are not exactly my friends, they are people I like and get to interact with every two weeks. 

    Maybe you could join a club or group, or go to a certain excersise session at a gym.  Regular groups are good because same people tend to go. 

    X

  • snap i'm not kidding.  same age i &  was diagnosed about month ago. i couldn't believe it. now i suspect my mum is on the spectrum. it explains a load of my behaviour. memories are coming back to me every week where i think, yep, that was a autustic trait. 

  • u are in no mans land. once u get a diagnosis it can be quite a shock, but it will help explain many of your behaviours so in long run it  will be good for you.  wishing u all the best,  keep in this blog so we can help.

  • Hello, I am 54 and only got diagnosed this week.