Hello - cure for Pervasive not otherwise specified Autism

Hi everyone,

I was diagnosed with Pervasive not otherwise specified Autism about 2 years ago. I suffer from incredible amounts of anxiety and I feel different from everyone else in sixth form.

I heard there is a new drug called Balovaptan which can decrease social issues as well as stem cell therapy treatment which is being discovered (according to CNN News). Do you think there will ever be medication or even a cure for autism in the future?

  • As covered by another user speak to your schools senco as you already have the diagnosis. They will organise the iep (individual education plan)  they apply to local authorities for funding. You may want to read about the 100 day kit that has been suggested but it is a kit for parents of children 4 and under who have just got diagnosis. Also it us only available in the states and they don't ship international so it will probably be no use to you. 

    UK guides say pdd-nos falls under the category of autism as such their is no cure alot of places claim stem cell treatment works but this is not proven. 

    Your gp can help with the anxiety side though there are alot of medications that really do help if you are reluctant to try medication ask for specialist autism therapy most people find the normal anxiety counselling offered is not tailored for them hence asking for specific. Look for local support groups they might be able to give you more information on what is available for you. The directory on this site also lists all services available and can be refined by need and area 

    Mostly remember that you are not alone and can find support here. Good luck 

  • Hi I have found a web site https://www.autismspeaks.org/ppd-nos that describes your condition. at the bottom of the Page it had 

    Parents of children diagnosed with PDD-NOS should pursue an Early Intervention Program (EIP) for a young child and an Individual Education Program (IEP) for a school-age child. For more information, see the Autism Speaks 100 Day Kit and IEP Guide. You are lucky You would certainly not understand anything at all if you had my son's severe autism, and not being able to comprehend Language except the most basic. So look on the Bright side. If you perceive the world differently to me it may well be to your advantage. Personally unless your specialist doctor prescribes a drug don't just take anything at all. even if recommended in an article.

    Go to your GP and try to get his support for the local authority to fund an EIP, while it may not do you much good if you are already in the 6th Form, if you are going further with your education, it may well help you cope with your disability. by getting a greater understanding of how you are disadvantaged. in the general melee and getting pushed aside.

    Good luck.

  • I don't know but you could try speaking to your gp? and asking them to treat the anxiety? so sorry its hard I know but I'm sure there is somebody on here who can sign post you or offer more specialist advice. Good luck