Hello everyone, diagnosed yesterday with autism and hypermobility, I am looking forward to joining this community and sharing experiences... it’s been a strange journey, my head is buzzing today!
Welcome to the forum! There are lots of knowledgeable people on here that will be able to help you with any questions you might have. I have hypermobility too.
Thanks! I had suspected I was autistic but had no idea about the hypermobility. Apparently I have had a range of symptoms for decades and not known was all connected, was it the same for you?
Hi is your hypermobility one of the eds's ?
Hi Song yes, apparently so, I’m being referred for blood tests for vit D etc, they told me that my autism may mean that I may not have been aware of cues from my body Do you know more about this?
Hi! Your bio sounds familiar : ) I found out two days ago now, just woke up 3am and had to get up as had a huge rule breaking dream and woke up to a head full of noise and realisations... I think it may be sinking in!
"It's been a long road travelled". Yep that sounds familiar! Trust me you will have a lot of questions you ask yourself at first but after a while so much stuff begins to make sense. I've got to ask, if you have a vivid dream does the feeling stay with you when you wake up? If I have a vivid dream I can wake up to overload.
Thanks Cloudy Definitely vivid dreams stay with me, particularly during periods of stress (change). Although my diagnosis is making sense to me, it does not to some of the people in my life, when I try to speak about it I am not doing very well, do you have any tips?
Hi yes I have type 3 eds are they saying the 2 are linked?
When you get your eyes checked you must tell them about the eds.
Try not to let it take your feeling of self over. I sort of lost my sense of identity at first but I was never "I have Autism and my name is Cloudy", I've always been "I'm Cloudy and I just happen to have Autism", or as a wise person said "I have ASD, ASD doesn't have me!". I just started to look at things in my past and question a lot of things in my personality. Don't! I've realised speaking to people here and working through things myself that a diagnosis is a good time to keep all the things that work and start using the diagnosis to work on the things I've found challenging.
I'd say come to terms with it first then you will be able to speak about it more clearly. When you first get your diagnosis they will give you a general description of what it entails but you will realise what applies to you. Some people will do their research too. Rome wasn't built in a day! Do everything at a pace that you feel you can handle.
Vivid dreams can mess up a chunk of my day. It carries through into being awake!