My son asked me if he was autistic today...

He's been told there's 'something wrong with him' by nasty kids in the past, and he is different from other kids. 

Really sweet, a bit awkward in terms of understanding personal boundaries (very touchy / feely, sometimes overwhelmingly so, I just think he loves physical contact), his speech is always the clearest and he repeats incorrect verbal formations until the cows come home. Literally spent last two years starting every sentence with 'Even...', and has only just stopped doing this, though it sometimes sneaks in.

We had him assessed by educational psychologist when he was in Y3 as he was struggling to get to grips with maths and english, and she diagnosed 'specific speech impairment', which explains the language processing issues.

His handwriting is terrible, but he works reasonably well when he's typing on word processor, and while his grades aren't amazing, he's keeping up with the average, albeit with huge input from us during homework. 

He still struggles socially, not picking up people's cues, but he is generally liked as he is really sweet, and the older years especiaally seem to make a fuss of him.

He ran his finger over a sharp blade and cut himself at hockey, and a dad who was watching asked him if he had autism. The dad in question has an autistic son. He came home and asked me what autism was, and whether he might have it, and I told him that we'd had him assessed and no one had ever suggested he did.

Then this aft, he came in and asked again, after misjudging a situation where a group of boys were goofing around - he thought they were play-fighting and joined in! 

I explained about physical boundaries and he nodded, but I can never tell if he's even in control of his impulses. I don't know if he is a tiny bit on the spectrum, what that means, what support I could be giving him,

or whether he's just a sweet, other-worldly, quite immature child for his age?

  • Former Member
    Former Member

    Getting a diagnosis might satisfy curiosity or it might be required to resolve a problem. It need not pathologise because it can become a piece of information that you can use, or not, as the need arise. There is absolutely no need for it to become judegmental as a criticism of him or an excuse for his behaviour. You would not have to think about the diagnosis all of the time, he would not become disabled because of this label. Many people on this forum, such as myself, have found the information absolutely liberating and it has enabled some people to find a much happier path in life because it allows them to understand things in a different light.

    There is a difference between innate, intrinsic personality type and the behaviours that develop and are learnt and ingrained and encouraged or discouraged by contact with society. New good behaviours can be learnt and encouraged. His underlying autism, if he has it, is an immovable aspect of his personality that is one of the things that make him unique. When you talk about his quirks, are you describing his behaviours or his innate reflexes and abilities (or limits) to do different things? It may be that you cannot tell the difference and the question may make little sense until you have studied him, and other people for comparison, more.

    Perhaps you can give an example of something that you think is beyond acceptable in your mind?

  • Thank you everyone for your thoughts. I am just struggling with the difference between voicing an anxiety and going full pelt for a assessment and potential diagnosis as I am worried that I am pathologising my son. If he is autistic, he needs strategies, acknowledgment and help. If he isn't, I am potentially suggesting his quirks are beyond normal acceptable personality difference. I've been on mumsnet and they are all very much pushing for a acceptance that he is autistic without diagnosis, it's her that I am being told to see someone and consider all possibilities. If everything I read about aspergers and autism struck a chord, then I would make my peace with it, but it's the fact that only some characteristics do. So I'm just trying to decide what to do next, if anything.

  • Former Member
    Former Member

    Removed by moderator

    Longman raises relevant questions but in the end you and your son need to be comfortable with the decision that you make and there is no clear right or wrong answer to the dilemma.

    I suspect that your son's curiosity may force the issue at some point. If he wants to know and if he has been reasonably educated about what it means beforehand then it might make sense to find out properly and then he can move on with more knowledge.

    It is not uncommon for one or both parents to discover that they are also on the spectrum when a child is thought to have autistic traits. Have you considered this possibility?

  • Thank you all for your replies... 

    I am reading Tony Harwood PDF on autism in young people, and while some things jump out at me, others really don't, so I am wondering if he has elements of Asperger's but too mild to diagnose (which is apparently a thing, according to TH).

    Also, I am leery of diagnoses as he was falsely diagnosed as severely dyslexic when he was seven, when he's not at all! 

    Human error is a variable we have to factor in, and I want to be able to help my son if he is in fact autistic, but don't want him falsely labelled if he isn't - hope this makes sense.

  • Former Member
    Former Member

    It is not possible to make a diagnosis via these discussions. Ferret's opinion is an opinion but it does not rule it out and even the Ed Psych's opinion is only an opinion. It is quite possible for an Ed Psych to miss autism - you really need to see a specialist who can really sort the wheat from the chaff. Autism is not easy to accurately diagnose and there are lots of forum members here who have had a series of different diagnoses before finding one that is actually usefully correct.

    Having said all of that, he wouldn't need a diagnosis unless he had a significant problem and needed special treatment (by the school or by mental health specialists) Autism isn't a problem unless he is unable to cope with either a) any social environment or b) if the social situation that he finds himself in is intolerant of people who are different. I managed more or less until I found myself with a company that was basically incompatible with autistic people. I had been an odd child and had various siutations over the years but did not need a diagnosis until I was 56. In hindsight, it makes sense of a lot of things that happened over the years but I didn't need treatment until that point. It would have been good to have been aware of my differences before then though so I would suggest that you read up on Aspergers (Tony Attwood's book is a good place to start) and tell him that being different isn't necessarily a problem.

    All of the above comes with a big caveat to say that I have no idea if he has autistic traits but I cannot say that he doesn't (I hope that makes sense?)