Confused Mother who wants to learn...

Hi Everyone, 

I'm new to this site but i'd really like some advice.. I'll keep it short as i know posts can get way too long.

Short story: My son is 6

                 I always knew something wasn't 'right' from the age of 2, i was told my family members my son was fine so did nothing.

2 years ago i went to my GP with sleepings problems and tics (eye blinking) was told relaxation CD's

Fast forward January 2015, went to my GP for tics(eyes,facial,vocal) not sleeping and behaviour (obsessions e.g a fear of his teeth falling out, refused to eat, cleaned his teeth at any given time, even left the cinema because he was scared that much, just to come home to clean his teeth.. resulted in me calling 101 and getting a nurse to reassure him from our local out of hours doctors) There is way more to list but thats one example.

Referred to Paed, 1st met my son,Conners sent out to school and myself. 

2nd appointment met my son,referred to CAMHS

3rd appointment met my son,Melotonin prescribed as he shares a room with his younger sister and was affecting us all.

4th appointment met my son, spoke about how things were going

Met with CAMHS worker.met my son

Went to CAMHS appointment on my own more indepth session of concerns.

Paed rang me and explained she would like to do a development session with me.

School wrote to PAED, state they have NO issues.

Parents evening at school. School inform me my son is to go on report for his behaviour. He makes 'bad' choices and forces children to do right when they do wrong instead of asking for teachers help. Also finds it difficult to manage his emotions, hates being told off and the thought of being a failure, tries to people please. And is a perfectionist in his work so much so it detracts him from the subject and enjoyment of learning. Does not like to work for long, often seen banging his hand on his head although classroom is very much free flow all day so isnt expected to sit down for no longer than 10 minutes at a time.

But yet school have NO issues, i questioned everything they said and confronted them saying i know exactly what they said to my PAED, but that does NOT reflect what i have just heard. My son is to go report and finds it difficult to manage his emotions???? 

I informed my PAED of this information and a more indepth form was sent to school.

Meet with PAED last friday, development forms completed. Informed PAED the tics were getting worse, he know rubs shoulder on ear and complains of neck ache.

End of session the PAED explained she had spoken to a colleague and she is thinking Aspergers. 

Complete and utter shock, i did not cry. I just nodded. PAED informs me she is to wait for the completed forms from school, if it is useless she would like me to meet with her colleague who specialises in Tics and will ask for a report from her to gather information for a diagnosis. 

I don't know how i am feeling, shock, upset, guilt... I really don't know. I cried in the car all the way home. 

I am so angry with school, so angry! They say he has lots of friends, and i see he does, they tend to be older children however he plays with children, which is why i was lead to believe autism was ruled out. Maybe some anxiety issues.. OCD.. 

I want to learn everything... I suppose this is why i write this post. 

If school dont comply will it be harder for my PAED? 

I know i said this was going to be a short post LOL, i guess i got carried away but would you believe me if i said this IS the short version.

Thank you if you got this far

xxx

  • Well, you're right of course, there is no definition of normal, only a general public perception, it seems.

    Erm, I'm not sure what to make of a teacher who cries when you talk to her, she'd be more use taking her responsibilities seriously. She not only sees your son all day, but clearly has something to add to the picture of your boy already. She isn't qualified to interpret anything OR decide on how important it might or might not be. There are more helpful strategies she can adopt.

    Teachers generally wouldn't see many ASD children, and it wouldn't be right to expect them to know what they're seeing, but if they only report unusual behaviours properly you've at least got the chance to build up that picture between you.

    Maths is a common Aspie skill, we seem to like numbers, they're logical and predictable. Be careful of the 'reading' skills, we commonly read well and use 'big' words, but our understanding can be deficient. An easy one to watch for is if he uses an 'advanced' word or phrase innapropriately when he's chatting.

    Good luck with it all, stay cool, be well Smile

  • Thank you for replying. Oh no my name haha i didn't see that.. it actually says 'Theres no such thing as normal' i thought it was just a quote or something you had to put on your profile, OOOOPS!

    Yes your right, school are actually starting to cover their backs now. Saying one thing and then another. I actually made his teacher cry. She told me she doesnt think there is anything wrong and didnt see why she had to fill in the conners questionnaire, i replied okay on what grounds have you come to those decisions? are you a medic? or a teacher? 

    She burst out crying and told me the sob story about how she understands how i feel as mother and it must be difficult. To then telling me shes seen my son bang his head numerous times, and this that the classroom fits his learning needs as its pretty much freeflow all day. WHAT? you just contradicted yourself there?

    Anyhow yes im coming to terms with it, i shout less now. The melotonin helps, we all wake up refreshed and its starting to become a less stressed household. Although my boy loves being outside so im sure the warm weather adds to this. He can be outside from school to bed. 

    I am researching my ass off lol, literally im looking at everything. One positive i got back from school is hes exceeding in his maths, above national average and his reading too. Proud of him, hes got a special treat for that.

    Thank you and i will ask you guys anything i don't know or understand

  • p.s. The last message IS the short, edited version *chortle*

  • HI

    Firstly, would you like to change your user name to something we can actually call you, please? And thank you for editing your post, that's very ASD, LOL!

    OK. Please allow me to congratulate you on potentialy having a very special child. You may now called on to be an exceptional Mum, and I can see that you're 99% there already.

    Schools love to 'blame the parents' - it seems a common experience. I know that mine were, and clearly your experience of school is the same. I DO NOT trust anyone who says one thing in one place, and entirely another in another place. It is dishonest, and may well harm your child. Also, teachers are taught how to teach (some of them are even interested!) not to diagnose. However, that doesn't absolve them of their responsibilities to report their observations fairly and accurately, so you should see some fine a**e covering from them now.

    Given what you've obviously been through with him, it is hardly surprising that you feel the way that you do. I hope that you've got over your initial reaction and that you're settling into your 'new' role. Actually the same role, but with a new and more important perspective Smile

    To more important matters. If the diagnosis is confirmed, it will open up some possibilities for you. My best advice to you right now would be to get yourself informed from this website. Between the online pages, and this forum, you might see things in your son that you've never seen or interpreted in the best way.

    ASK. This is most important. Any little aspect of his behaviour could be significant, but you won't necessarily know yet. There are plenty of us here that know the abuse, scorn and ridicule that ASD attracts, and we are very keen to get early diagnoses so that our children can be properly protected. So ask, and we will tell you.

    Elsewhere on here we are discussing useful publications. I am a fan of Tony Attwood and recommend a copy of his 'The Complete Guide to Asperger's Syndrome'. Please don't think that Asperger's is a separate condition, and please don't fall for the 'higher functioning' description. ASD is ASD no matter where we are on the spectrum, so many aspects are common to all.

    The diagnosis is NOT a death sentence, it's a life affirmation. Your relationship with your son may be slighlty different - different does not mean worse. Good luck with the process, and come back soon!

    Welcome to our world Smile