Confused Mother who wants to learn...

Hi Everyone, 

I'm new to this site but i'd really like some advice.. I'll keep it short as i know posts can get way too long.

Short story: My son is 6

                 I always knew something wasn't 'right' from the age of 2, i was told my family members my son was fine so did nothing.

2 years ago i went to my GP with sleepings problems and tics (eye blinking) was told relaxation CD's

Fast forward January 2015, went to my GP for tics(eyes,facial,vocal) not sleeping and behaviour (obsessions e.g a fear of his teeth falling out, refused to eat, cleaned his teeth at any given time, even left the cinema because he was scared that much, just to come home to clean his teeth.. resulted in me calling 101 and getting a nurse to reassure him from our local out of hours doctors) There is way more to list but thats one example.

Referred to Paed, 1st met my son,Conners sent out to school and myself. 

2nd appointment met my son,referred to CAMHS

3rd appointment met my son,Melotonin prescribed as he shares a room with his younger sister and was affecting us all.

4th appointment met my son, spoke about how things were going

Met with CAMHS worker.met my son

Went to CAMHS appointment on my own more indepth session of concerns.

Paed rang me and explained she would like to do a development session with me.

School wrote to PAED, state they have NO issues.

Parents evening at school. School inform me my son is to go on report for his behaviour. He makes 'bad' choices and forces children to do right when they do wrong instead of asking for teachers help. Also finds it difficult to manage his emotions, hates being told off and the thought of being a failure, tries to people please. And is a perfectionist in his work so much so it detracts him from the subject and enjoyment of learning. Does not like to work for long, often seen banging his hand on his head although classroom is very much free flow all day so isnt expected to sit down for no longer than 10 minutes at a time.

But yet school have NO issues, i questioned everything they said and confronted them saying i know exactly what they said to my PAED, but that does NOT reflect what i have just heard. My son is to go report and finds it difficult to manage his emotions???? 

I informed my PAED of this information and a more indepth form was sent to school.

Meet with PAED last friday, development forms completed. Informed PAED the tics were getting worse, he know rubs shoulder on ear and complains of neck ache.

End of session the PAED explained she had spoken to a colleague and she is thinking Aspergers. 

Complete and utter shock, i did not cry. I just nodded. PAED informs me she is to wait for the completed forms from school, if it is useless she would like me to meet with her colleague who specialises in Tics and will ask for a report from her to gather information for a diagnosis. 

I don't know how i am feeling, shock, upset, guilt... I really don't know. I cried in the car all the way home. 

I am so angry with school, so angry! They say he has lots of friends, and i see he does, they tend to be older children however he plays with children, which is why i was lead to believe autism was ruled out. Maybe some anxiety issues.. OCD.. 

I want to learn everything... I suppose this is why i write this post. 

If school dont comply will it be harder for my PAED? 

I know i said this was going to be a short post LOL, i guess i got carried away but would you believe me if i said this IS the short version.

Thank you if you got this far

xxx

Parents
  • Well, you're right of course, there is no definition of normal, only a general public perception, it seems.

    Erm, I'm not sure what to make of a teacher who cries when you talk to her, she'd be more use taking her responsibilities seriously. She not only sees your son all day, but clearly has something to add to the picture of your boy already. She isn't qualified to interpret anything OR decide on how important it might or might not be. There are more helpful strategies she can adopt.

    Teachers generally wouldn't see many ASD children, and it wouldn't be right to expect them to know what they're seeing, but if they only report unusual behaviours properly you've at least got the chance to build up that picture between you.

    Maths is a common Aspie skill, we seem to like numbers, they're logical and predictable. Be careful of the 'reading' skills, we commonly read well and use 'big' words, but our understanding can be deficient. An easy one to watch for is if he uses an 'advanced' word or phrase innapropriately when he's chatting.

    Good luck with it all, stay cool, be well Smile

Reply
  • Well, you're right of course, there is no definition of normal, only a general public perception, it seems.

    Erm, I'm not sure what to make of a teacher who cries when you talk to her, she'd be more use taking her responsibilities seriously. She not only sees your son all day, but clearly has something to add to the picture of your boy already. She isn't qualified to interpret anything OR decide on how important it might or might not be. There are more helpful strategies she can adopt.

    Teachers generally wouldn't see many ASD children, and it wouldn't be right to expect them to know what they're seeing, but if they only report unusual behaviours properly you've at least got the chance to build up that picture between you.

    Maths is a common Aspie skill, we seem to like numbers, they're logical and predictable. Be careful of the 'reading' skills, we commonly read well and use 'big' words, but our understanding can be deficient. An easy one to watch for is if he uses an 'advanced' word or phrase innapropriately when he's chatting.

    Good luck with it all, stay cool, be well Smile

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