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Emotional dysregulation- advice desperately needed

NAS71657

I struggle terribly with emotional dysregulation- caused by specific issues. I suffer mentally and physically. I have no support network and cannot access timely support. GPs in my region know little about Asperger's and do not recognise adult ADHD. When I need to speak to someone knowledgeable to prevent my anxiety escalating there is no one. I am only given the number of the Samaritans etc. Sometimes I cannot get through on the helpline or it is closed during certain hours. Any ideas what I can do? I have a worry I have been brooding over all day and its getting worse.

Parents

  • Me too! I think it's been getting better lately after a LOT of therapy, but it's so hard when stress levels rise. After a recent trip to the GP because of extraordinary stress (autism + pending major operation + family crisis), I have a prescription for beta blockers which I take occasionally when I feel that I'm getting too wound up. Personally, I'm finding that a fitness tracker helps me to see roughly where I am at, because otherwise I'm not particularly aware of how bad things are getting. I can then see when my heart rate isn't dropping to a reasonable level when I'm resting. I the sometimes take a tablet. When I'm really unwound I find the triggers don't trigger me to the same extent.

    Also, I've been going to the gym regularly again. Mentally that's good for me. I couldn't bring myself to go for ages because of COVID related worries, but I'm recently immunised so I think the risk is somewhat mitigated. I like focusing on the screen. It's a bit like a game for me - trying to get my heart rate in certain zones, and to match my cadence with the target for a chosen workout.

    I can't say that I've absolutely cracked it and I guess I will always remain vulnerable to triggers because the autism isn't going to go away. Different things work better for different people and I hope over time that you begin to find a few ways of dealing with it.

Reply

  • Me too! I think it's been getting better lately after a LOT of therapy, but it's so hard when stress levels rise. After a recent trip to the GP because of extraordinary stress (autism + pending major operation + family crisis), I have a prescription for beta blockers which I take occasionally when I feel that I'm getting too wound up. Personally, I'm finding that a fitness tracker helps me to see roughly where I am at, because otherwise I'm not particularly aware of how bad things are getting. I can then see when my heart rate isn't dropping to a reasonable level when I'm resting. I the sometimes take a tablet. When I'm really unwound I find the triggers don't trigger me to the same extent.

    Also, I've been going to the gym regularly again. Mentally that's good for me. I couldn't bring myself to go for ages because of COVID related worries, but I'm recently immunised so I think the risk is somewhat mitigated. I like focusing on the screen. It's a bit like a game for me - trying to get my heart rate in certain zones, and to match my cadence with the target for a chosen workout.

    I can't say that I've absolutely cracked it and I guess I will always remain vulnerable to triggers because the autism isn't going to go away. Different things work better for different people and I hope over time that you begin to find a few ways of dealing with it.

Children
  • in reply to N A S 9 6 2 3 8 🤯

    As you say, different things work for different people. Hypnotherapy helped considerably for a time, but the holy grail is finding a way to minimise the effect of the triggers before things get out of hand.