Recent Diagnosis

We've found the same..but are still awaiting DX..because my boys have additional health issues not connected to ASD (well as far as I am aware) we have access to activites for kids with extra needs etc..these are the biggest help ever.

We have only just been signposted to them and I am so grateful as I don't know how I would have coped over the holidays without knowing places I could take them.

I think with all special needs families the process is diagnosis, getting your head round it then deciding what you need and fighting for it..sad but true..some weeks I sent days on the phone badgering various departments about my kids breathing issues.

That was sometime ago now but things are starting to happen and services put in place more now...I don't imagine it will be any different if O is assessed with an ASD dx. It was the same for me when I became ill. Best thing I did for us was arm myself with as much knowledge as I could then go for it.

Easier said than done when you are tired and worried (and I am not saying this to go oh look aren't I clever..because I nearly gave up on many occasions) but somehow us mum's have a way of getting stuff for our kids by whatever means necessary. Let's face it us parents are pretty darn determined.

GG's right being on here talking about your frustrations does really help.

Take care

Oatie

Our paed referred us to social work as well ... the boys now go to an activity scheme in the school holidays which they love.  They're also able to get swimming lessons for children with extra needs and I think there are other activities they can do which we're not involved in at the moment.

Support wise, DH & I felt that we were kind of given the dx and then left to fend for ourselves which was hard. 

Hope you're getting on OK and that you don't have too long to wait for the next appointments.

GG x

My paed was very good and referred us to social work and they referred us onto other agencies we are waiting to hear from . But other than that we have very little support which makes you frustrated but i read somewhere that this frustration looking for help is part of the acceptance road ..but im afraid its banging down peoples doors asking for help ...i hope this helps you a bit ..there are a few of us on here who are all at the same stage in the diagnosis process and we all seem to say the same lack of knowing what to do .. but we all keep each other going ..

feel free to write to me anytime sometimes just talking about it helps and sometimes other parents are the best source of info

xx  

Hi thx for comments.  Im just wondering when it comes to second diagnosis, what happens after that?  We are attending speech therapy and wee man is due to start in nursery in September.  I just wondered outside of that will I get any support or guidance? Ive read in articles were we are assigned to a team and support workers.  Dont know how true this is, does any1 have any info for me?

Lyn

Im afraid thats what seems to happen across the country .My son was seen with community paed who is expert on adhd/autism .He has been referred to speech therapy . He has initially been diagnosed wioth adhd / asd? but at what point on the spectrum is not clear yet ..this happened in may and we are still waiting for speech therapy ..I have been told it can take up to a year to have full diagnosis ..

hope this helps a little 

shirley x