Describing pain

Does anyone else struggle explaining how they feel with pain? I saw my GP this morning cause I've been having pains and when she asked what sort of pain it was I couldn't answer her because I don't know. Pain is pain to me. It just hurts, I couldn't elaborate on that anymore. And then she asked me what scale my pain was on from 1-10. I couldn't answer that either, it just hurt I didn't know how to explain it. 

I'm pretty sure she rolled her eyes at me though can't be 100% sure of it but I'm pretty sure I saw that. She definitely gave me a look though like I was wasting her time. 

I left feeling really awkward and lonely because no one around me gets what this is actually like. 

It reminded me of when I was little and had tummy pain and my mum asked me what type of pain it was then too and again I didn't know I just said it hurt. 

I'm wondering if this is autism related?

Parents
  • Happy to see you back here! I also don’t know how I can describe pain. I can only say, where I have it if it’s pain in some part of my body. But if it’s too cold then I feel pain in my whole body. If I’m too stressed or anxious I also feel some sort of pain but I do t know where and what kind of pain. I think it’s poor interoception, if I remember the term properly. I’m sorry to hear that your doctor rolled her eyes. I also had doctors reacting similarly. It’s disheartening and actually appalling experience for the patient. Does she know that you are autistic? 

Reply
  • Happy to see you back here! I also don’t know how I can describe pain. I can only say, where I have it if it’s pain in some part of my body. But if it’s too cold then I feel pain in my whole body. If I’m too stressed or anxious I also feel some sort of pain but I do t know where and what kind of pain. I think it’s poor interoception, if I remember the term properly. I’m sorry to hear that your doctor rolled her eyes. I also had doctors reacting similarly. It’s disheartening and actually appalling experience for the patient. Does she know that you are autistic? 

Children
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