ASD, constipation slow motility

Hi,

My four year old suffers with chronic constipation- 1 unbelievable sized poop about every four days (diet is amazing, lots of veg ect and take probiotics). Happy boy, wore clothes, went to nursery. He was started on high dose laxido 6+1 for everyday he didn't poop. The laxido turned the poop liquid but it still was not coming out and required urgent acute admissions for enemas (now doing these at home). My son was in extreme pain daily, I mean like a wild animal and biting his arm black and blue- relieved instantly by enema. We have stopped laxido and are now on lactulose and senna. Again nothing for four days and then pain and he requires an enema. The Drs diagnosis is autism- is is autism that's causing the slow motility and a sensory over reaction to the sensation as an explanation for the pain. I feel like I have been to war the last few months and am desperate for help and all I'm getting is autism and no investigations or tests?!?!?  I feel that if any child had 21 sachets of laxido in there gut festering for three/four days they would also be in agonizing pain but would get investigations done. Anybody experienced anything similar?

Parents
  • I found that 2 weetabix taken several times a week cured the constipation that I'd been suffering for several years ever since I stopped eating them regularly a few years ago... 

    If I stop eating them, it comes back. I don't know if that's useful information, to anyone else, but it took me an embarrassingly long time to make the connection.

    Prior to my changing my diet to exclude weetabix (change of circumstances lifestyle) constipation was something I simply did not understand that meant people spent an inexplicably long time in the toilet. When it finally came to me, I put it down to advancing age, but thankfully it's now once again an "other peoples problem", and not mine. 

Reply
  • I found that 2 weetabix taken several times a week cured the constipation that I'd been suffering for several years ever since I stopped eating them regularly a few years ago... 

    If I stop eating them, it comes back. I don't know if that's useful information, to anyone else, but it took me an embarrassingly long time to make the connection.

    Prior to my changing my diet to exclude weetabix (change of circumstances lifestyle) constipation was something I simply did not understand that meant people spent an inexplicably long time in the toilet. When it finally came to me, I put it down to advancing age, but thankfully it's now once again an "other peoples problem", and not mine. 

Children