Published on 12, July, 2020
Hi,
My four year old suffers with chronic constipation- 1 unbelievable sized poop about every four days (diet is amazing, lots of veg ect and take probiotics). Happy boy, wore clothes, went to nursery. He was started on high dose laxido 6+1 for everyday he didn't poop. The laxido turned the poop liquid but it still was not coming out and required urgent acute admissions for enemas (now doing these at home). My son was in extreme pain daily, I mean like a wild animal and biting his arm black and blue- relieved instantly by enema. We have stopped laxido and are now on lactulose and senna. Again nothing for four days and then pain and he requires an enema. The Drs diagnosis is autism- is is autism that's causing the slow motility and a sensory over reaction to the sensation as an explanation for the pain. I feel like I have been to war the last few months and am desperate for help and all I'm getting is autism and no investigations or tests?!?!? I feel that if any child had 21 sachets of laxido in there gut festering for three/four days they would also be in agonizing pain but would get investigations done. Anybody experienced anything similar?
I've had fast motility since childhood, to the extent that it can be a battle to get enough calories to survive, and to manage the condition well enough to be able to leave the house. A strict elimination and reintroduction diet confirmed it's not a specific allergy. All my autistic family members are the same, while the neurotypicals are unaffected. Research has shown that autistic people often have an excess of serotonin, which can increase gut motility.