How do you cope with health anxiety?

I think this is something the majority of us get.

Just talking on the phone is a BIG deal and causes so much anxiety and stress. And that's just talking to the usually rude receptionist.

I feel like there should be an email or text service to chat to your doctor, which would be better for autistic people.

We need more support and more useful tactics in this department. Stress is very real and so is health anxiety.

I might write to my mp and my surgery. Not sure it'll get me anywhere but it's got to be worth a go?

I know Dawn from here suffers from this as well. She does a lot to try and get improvements in the health sector for autistic people so this is something I'm going to try and do as well.

I'll keep you posted and update if I can get anywhere. Be good for us now and future generations of autistic people young and old.

  • Oh dear god.......another spam missile a good few thousand miles off-target.

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  • I'm so lucky I have 3 brilliant GP's at my surgery, they know I'm autistic and aren't bothered about it at all, in fact they've helped me to get diagnosed and to manage problems as much as possible. I would hate not to see my GP face to face and to only have the option of digital or zoom, so much can be missed when they don't see you in person.

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  • Delve into this website for additional insights [link removed by moderator]

  • A good plan. I myself dislike using the phone and would only use it on pain of death. The anxiety of speaking to others on a verbal level is daunting in its own right, but to speak to someone who you know nothing about can be particularly daunting.

    Whilst I certainly can't beat the feeling, I at least try to work with it or around it and it sometimes pays off. But ultimately, I would rather I kept to text speech than on a melodious method. 

    The NHS do cater for the hard of hearing, so perhaps the idea of a text-based service wouldn't go amiss. It's a question of whether they'd see it our way and would show mercy on our plight.

    I'm all for it either way. If there is ever a petition, I'd happily sign my name

  • Hello Bot-meister.

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  • I'm looking into how to complain about my GP surgery. Every time I contact them I let them know I can't communicate by phone call. Every time they respond by SMS from a number that doesn't allow replies, saying call us. Nothing else. This has to be illegal?

  • In my head, chat gpt is something I would use to speak to a doctor, I know it isn't.  I've never used it. You are probably right. With my technological illiteracy, I lump all of this stuff into one ball. Can't believe the owd codgers know more than us "young uns"! 

  • NAS77450 (the 3rd post down) and ChatGPT seem to be one and the same.

    I think you may be confusing the "stylised" result of using the chatgpt translation tool, and a bot?

    I would be surprised if a bot would mention our "socky" Dawn in this context?

    I reckon (despite a lot of circumstantial evidence to the contrary,) that this post was initiated by a human.

    I hate that we can have this type of query now.

  • My GP has disabled that option 

  • I hope things have improved for you now DD. Health anxiety is a serious and common part of autism, which alas most professionals do not understand. 

    I'm grateful to be part of this community as we all understand and can offer support and encouragement.

  • there is a email service, its that ask my gp thing. 
    i never used the gp before but when they released that ask my gp ive been spamming them all the time lol
    although most of the time they ring me back even when i click to contact me by email.

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  • Coping with health anxiety involves acknowledging fears, seeking professional guidance, and adopting stress management techniques. Engaging in mindfulness, maintaining a healthy lifestyle, and communicating openly can contribute to better mental well-being. If you're struggling, consider consulting a mental health professional for personalized support. This answer has been generated using [link removed]

  • Maybe one day doctors who specialise in autism will be a thing! That would be amazing and such a big help for me you and so many other people here.

    I really appreciate how people share there stories here it helps to know we're not alone and there's people who have got through things that I'm currently trying to get through.

    I love this community it's an amazing place.

  • I think you’re right - I think it would be great if there were doctors who specialised in helping people with autism. There really isn’t enough help out there. I’m sorry you struggle too - I really appreciate that people share their stories on here - it helps so much to know we’re not alone.