Guidance for Adults for Assessment & Diagnosis through the NHS

Here is information on what to do to get assessed:

http://www.autism.org.uk/about-autism/all-about-diagnosis/diagnosis-information-for-adults/how-do-i-get-a-diagnosis.aspx (NAS also have a helpline)

Here is a shortened version of the AQ50 (a validated test by Simon Baron-Cohen et al used in ASC assessments) which GP's should use as a screening tool prior to referral:

Link to AQ10 (autism quotient screening questionnaire): http://docs.autismresearchcentre.com/tests/AQ10.pdf (complete and take to GP).

Please note, your GP cannot fob you off with comments such as "there is no support for adults" or "we have no facility to assess locally" etc. You are entitled to an out-of-area assessment if there is no local clinic.

Your right to a second opinion on the NHS.

NHS choices regarding treatment, hospital, clinician etc.  Here is NHS Choose & Book.

NHS statement on referrals entitlement here and here.

Check (and leave) reviews of your clinic or hospital before you choose.  You may also read and leave reviews here by selecting your place of treatment from the menu.

Here is a quote from the Department of Health:

"Patients currently have the right to choose the organisation that provides their treatment when they are referred for their first outpatient appointment with a service led by consultants, and to information to support that choice. Any choice beyond this is at the discretion of the individual primary care trust (PCT). 

You may be aware that the Government has made a number of commitments relating to extending the choice of treatment and provider in the vast majority of NHS-funded services. Views on implementing these commitments were collected in the subsequent public consultation Greater choice and control. The formal responses to the consultation are being published on the Department of Health website at www.dh.gov.uk and can be found by typing ‘Greater choice and control’ in the search bar. 

The NHS Standard Contract states that providers must accept referrals for any patient who chooses that provider and whom it is within their clinical competence to treat. 

I would suggest that patients contact the Patient Advice and Liaison Service (PALS) at their local PCT, which can be found through the NHS Choices website at www.nhs.uk. PALS will be able to contact and investigate this issue with the chosen provider."

NHS statement on referrals entitlement: http://www.nhs.uk/chq/Pages/1094.aspx?CategoryID=68&SubCategoryID=153

and

http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/gp-referrals.aspx 

NHS NICE guidelines here: http://www.nice.org.uk/CG142 

Autism Strategy here: 

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/151844/dh_122910.pdf.pdf 

If you need to complain to the NHS about their failures, here: 

http://www.nhs.uk/choiceintheNHS/Rightsandpledges/complaints/Pages/NHScomplaints.aspx 

Anyone facing trouble getting their GP to listen, contact your local councillor here: 

http://www.writetothem.com/ 

If you do not get sufficient help from them, go to your MP here: 

http://www.theyworkforyou.com/ 

There is also the Lords but they have no duty to reply to members of the public: 

http://www.writetothem.com/lords

(Mods: please could this be made into a sticky?)

Parents
  • Hi

     

    Another newbie here.

     

    I have suspected I have some form of Autism for the last 15 years (as my stepson was diagnosed with ASD back in 1998 when he was 8, just before I met my wife)

    I have all the classic signs and have taken many online tests that all score high in the ASD area, I know these are not completely accurate but it just made my case more solid and convincing. I am 100% convinced I do have some form of autism and my wife was sceptical at first but once she "observed" my behaviour and habits she is now more convinced I do have some sort of Autism.

    I don’t have any issues and I am completely happy with myself and my take on the world. I know what to avoid and more importantly how to remain calm most of the time!

    I have had a few meltdowns, purely down to what people would consider minor issues and I was totally over reacting. My emotions catch me out at times and I sometimes struggle with the simple day to day emotional stuff.

    I have been having difficulties at work recently but I cope by removing myself from conflicting situations and normally can deal with this. However things have now caught up with me and I am only a step away from being sacked. 

    I decided to get an assessment from my GP for this reason so I could set some boundaries at my work that allowed me some breathing space. 

    My initial meeting with the GP wasn’t that productive as she said that there are no assessments done in the local healthcare area and it would cost £1000 to send it outside. I said ok then lets do it. She then went on to say that maybe I should take some CBT or mindfulness sessions, I tried to explain that I have taken these years therapies before but found them irrelevant as I do not work A B C D... more like A C then D. I found the sessions I took stupid and totally wrong for me.

    Anyway I have to go back in 2 weeks to see if the process has been approved for further funding/approval 

    Can anyone give me some advice on this matter? as I got a sinking feeling when I spoke to my GP....

     

     

Reply
  • Hi

     

    Another newbie here.

     

    I have suspected I have some form of Autism for the last 15 years (as my stepson was diagnosed with ASD back in 1998 when he was 8, just before I met my wife)

    I have all the classic signs and have taken many online tests that all score high in the ASD area, I know these are not completely accurate but it just made my case more solid and convincing. I am 100% convinced I do have some form of autism and my wife was sceptical at first but once she "observed" my behaviour and habits she is now more convinced I do have some sort of Autism.

    I don’t have any issues and I am completely happy with myself and my take on the world. I know what to avoid and more importantly how to remain calm most of the time!

    I have had a few meltdowns, purely down to what people would consider minor issues and I was totally over reacting. My emotions catch me out at times and I sometimes struggle with the simple day to day emotional stuff.

    I have been having difficulties at work recently but I cope by removing myself from conflicting situations and normally can deal with this. However things have now caught up with me and I am only a step away from being sacked. 

    I decided to get an assessment from my GP for this reason so I could set some boundaries at my work that allowed me some breathing space. 

    My initial meeting with the GP wasn’t that productive as she said that there are no assessments done in the local healthcare area and it would cost £1000 to send it outside. I said ok then lets do it. She then went on to say that maybe I should take some CBT or mindfulness sessions, I tried to explain that I have taken these years therapies before but found them irrelevant as I do not work A B C D... more like A C then D. I found the sessions I took stupid and totally wrong for me.

    Anyway I have to go back in 2 weeks to see if the process has been approved for further funding/approval 

    Can anyone give me some advice on this matter? as I got a sinking feeling when I spoke to my GP....

     

     

Children
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