My Health

The thing is, even if you're told you have (this many months or years) to live by doctors, they don't know the future in complete certainty, but they are just making predictions based on the research and patterns they've seen from the past from people with the same condition.

Think about Stephen Hawking, his condition showed up in his 20s, and most doctors would have given him a few years to live, but he lived until he was 76 years old!

There's also a man who is in an "iron lung," named Paul Alexander. He contracted polio at aged 6, and couldn't breathe. The doctors were going to give up on him, but one doctor didn't, and rushed to have an emergency surgery to save his life. I mean he's confined in this huge iron lung machine, but he fought to make his dreams come true, even when everyone said he could not do it. He fought hard to become a lawyer! He uses a stick in his mouth to read books, and has even typed his own book using that method. He's in his 70s right now.

I mean doctors will make predictions, but it's still your life, and you still have potential to do many things. 

Yes I'm the same if you can find the correct person to talk to it can be really helpful but finding the correct person isn't always easy unfortunately! I also usually call in the evening, helps me to relax before bed otherwise I feel so low and have so much on my mind it's almost impossible to sleep.

Your cats sound like cuties.  I've not got a car sadly but I would love one. Not just for the purring but the company as well. They look soft as well, like they give great cuddles.

Thank you Chris. That's really kind of you.  You are always welcome to talk to me about what's on your mind as well.

Pigtail said:

I don't have a lot that works for me though I am defos going to try what you have said you do, just to see if it works for me as well. I call 111 and Samaritans nearly every day

thats the same too for me, i find talking to helplines alot better then using techniques or listening to a sound coming from a device, i do find talking to someone feels alot better if its the correct person and they do help with the way i am feeling, i do too call them everyday, i try to ring them in the evening so i can try and get my feelings down before i go to sleep.

Pigtail said:

but I see you can look up cats purring on YouTube so I might give that a try as well

I have 2 Maine Coon cats which i am grateful for, thier purs and meows are different to other cats and i myself find them more satisfying, you could search for them types of cats, they are very big and are nice to look at too.

Pigtail said:

I'm supposed to be dead in the next 6 months anyway

im sorry to hear this and that must be scary for you, i really do hope you recover from your health situation.

Here for a Chat whenever you need 

Yeah your totally right in everything you say, especially about needing nurturing support. I've found in my life and my own experiences that a lot of people say they care and understand whereas in reality they really don't, which I find upsetting and hurtful. Makes me feel like I don't want to be here, though that's a weird thought as I'm supposed to be dead in the next 6 months anyway. Guess it doesn't effect you feeling suicidal.

I also heard that cats purring can be soothing for people. I don't have a cat unfortunately, but I see you can look up cats purring on YouTube so I might give that a try as well.

Thank you for your reply. I really do appreciate your time. Thanks. 

I completely agree with everything you said above. What you do to feel better seems to work for you, I'm glad about that. I don't have a lot that works for me though I am defos going to try what you have said you do, just to see if it works for me as well. I call 111 and Samaritans nearly every day so if I can find something that will help me not need to do that then that would be fab.

Well it makes sense that your physical health will affect your mental and emotional health, because they are all connected in the body's system.

I think that support teams are likely trained to not suggest advice to patrons because of legal reasons (so they don't get sued for giving advice to someone that doesn't work for them and made the person feel even worse than they did before), so they mirror your own question back at you, and ask you "what do you usually do when..." (insert problem here), and then when you respond, that's the answer, then they think "problem solved" and then they hang up the phone on you. 

There's very little that can replace the nurturing support of a caregiver,  that is not given to you when you're expected to be old enough to support yourself, but we are all human beings, and without nurturing support, we all feel alone. But nurturing support is what heals people, and so many people are looking for it, for someone who just cares about them.

I think that yes, music is healing. I heard that the purring sounds that cats make can heal their bones. I mean some interesting things about sound, is that each sound can create a certain geometric shape, it's called "cymatics" or "sand sound vibration," and they take on a shape very similar to snowflake shapes or chakra symbols. Also in a book "The Hidden Messages of Water" were experiments, like saying "thank you" versus "I want to kill you" and looking at the water structure after a period of time, and the "thank you" was a nice snowflake-like structure, and the "I want to kill you" was unstructured and gross looking. I think that sound, thoughts, emotions, visuals, are all frequencies that can affect the body in positive or negative ways. So things like sound and affirmations are actually very helpful to the body. 

Ultimately I guess we are all alone and compassion kindness and help do not  actually come often. There is no magic wand and we do need to find a way to get what we need . Neurotypics seem expert, but we seem to speak a different language and few understand us about the major complex issues.

What can you do? Well my line is listening to positive affirmations on Spotify , meditating on your achievements with nice background sounds ( wind, water, birds, music). Spend time with people who make you feel good (if you have any).

I'm trying to get a good research based input into how we address these problems . Sounds like Kelly was a neurotypical with a big ego and using your problems to help her to do little useful for you or others, while getting paid for supposedly helping. I think the concept of help is abused by many, who are just helping themselves

I'm sorry you have been left feeling that way. I'm not surprised though, they seem to treat people the same way all over.

Whenever I call I always leave feeling neglected and almost wrong for calling them in the first place. But that's wrong, it shouldn't be that way at all. There paid to help and support and should do their best to do that but they never do. Clearly seems yours are the same as mine.

Kelly unbelievably is my care coordinator, but so far she has done no caring and has only ever made me feel worse.

Im sorry to hear this, mental health services have left me feeling rejected and aone too at times.

i once told a support worker about how i am feeling and all they said was "you have alot on your mind" and that was it, its not great when intrusive thoughts come in about how they have responded and the feeling of rejection does not go away.

What role does Kelly have? i feel people in services just say anything to dismiss people as quick as possible and get the feeling of they really dont care.